How on earth can it be New Year's Eve? How can I be staring down 2014, another year gone and another year scampering out of the gate? I feel like each year I write a tribute to the year, a tribute to the suckiness and a few things to be happy about. Usually it says something like, "2011, You Were a Stinker" or whatnot. Given that every year does not improve much in the family building department, I think I'll give that a rest this year. There's plenty of good stuff that happened in 2013, but, yet again, NO FREAKING BABY. No baby in my belly, no baby in my Little Room, nada. Two efforts to make said baby appear and...nothing.
It's strangely appropriate that I had my annual exam at the gynecologist today. End the year with the appointment I dread and hope that next year brings a different experience in that office. I still do not understand why you cannot just get your PAP smear in the RE's office. Why, when there is so much detailed exploration of my lady bits in that office, why can't they just swipe the cervy? Why must I go into the office that is filled with the experience I desperately want and cannot as of yet have to have that one little swipe? Argh. I did switch practices last year, because a) my old gynecologist was not exactly sensitive about the infertility and b) her office was a godawful cesspool of administrative hell (you had to come 20 minutes before your appointment or you would be "rescheduled" -- I came from school one day and was 5 minutes before my appointment and was made to wait AN ENTIRE HOUR to be "fit in," while hugely pregnant women and fresh babies surrounded me in the waiting room). The new practice is very Zen, with nary a harried office tech to be seen and, so far, very few hugely pregnant women. Plus there's a private waiting area, where I think you can hide if there are hugely pregnant women lurking about. Today the office staff were lovely but the nurse was perhaps cranky due to working on New Year's Eve. Or maybe she just didn't like me for some reason, as through the door I could hear her being perfectly pleasant to everyone else. She took my height and weight, and I could see the weight (ugh) but not the height. Until she input everything in and I saw it said 67.5 inches. WHAT THE WHAT? I am just shy of five foot six. I don't know how you gain an extra inch or two other than the speediest height stick maneuvering ever, but since it made my BMI a little more palatable I didn't say anything. Once I was at the doctor's a year or two ago and they put my weight in at 121 pounds. I just couldn't let them do it, because it was about 50 pounds off. I mean, for this year it's great (although I was a little concerned no one was like WHOAH NELLY, THIS LADY LOST A CRAPLOAD OF WEIGHT! and was concerned about, you know, cancer or something...), but the next time I go in I sure as hell am not going to weigh any 121 pounds. So I had them change it. This time vanity won out, because being 5 foot 7 1/2 sure helped my BMI, and no one will believe I have shrunk down next year. They will realize they just don't know how to wield the measuring stick thing and not suspect sudden onset osteoporosis. So anyway, I get ushered into my room and am told to put on the "gown," front open. Except the "gown" is more like a vest. How do you get off calling something a gown that doesn't come close to even grazing your ass? There was a paper blanket that was more like a doily, because that left my butt pretty open air as well. Oh well. The annual exam itself was perfunctory and not a big deal. It was what happened while I waited that was tough. I could hear the people in the room to my right. I could hear that they were being congratulated on being so pregnant, almost there (thank GOD according to the disembodied voice of the pregnant lady). AND THEN I HEARD A HEARTBEAT. That swishy sound I know from TV and movies and not my own experience, because I never get to hear one of those. Amplified and beautiful, and punctuated by laughter and the statement, "I never grow tired of hearing that!" Which made me feel a little better, because at least she appreciated the miracle that was happening. For her. While I sat mostly naked and barely covered in paper and struck by the thought that it's possible I may never hear that sound myself. Just through the walls of my gynecologists' office while I wait to get a PAP smear because fertility clinics don't do them. Sigh.
So here we are, one more New Year's Eve, one more year behind us and one more year ahead of us. I feel like I'm on a loop, saying, "I hope 201- is OUR YEAR!" 2010, 2011, 2012, 2013... and now 2014. So instead of feeling too terribly sorry for myself today, I mustered up excitement. Because while 2014 does not have a chance of being The Year of the Baby, it could be The Year of the Gestation or The Year We Do Our Homestudy. It's a year of possibility. (Just in case you're wondering why it's not the Year of the Baby, we can't do our last cycle until spring, because I need the chance to do Egg Boot Camp. More on that later.) I feel a bit at peace. If things work out medically with our new plan, then great! If things don't, hello and welcome world of adoption. I don't feel like I have a dead end in front of me. I feel like I have a world of possibility and our baby will be coming to us, I'm just not sure how.
In closing, I will share with you my rituals for New Year's Eve. Because I have rituals for everything, including fertility crap, you'd better believe I don't leave the crazy at the door on New Year's. Therefore, I spent the day deep cleaning. Mopping. Dusting. Vacuuming a second time. Taking out all the garbage after vacuuming. Get all the dirt of 2013 out of the house, chase out all that bad dirt. Welcome the new year with a fresh, clean house. Then, a bowl of oranges on the table. 14 oranges for 2014 (not sure if that means anything but I thought I'd respect the new year number). We will be opening the front door for 2014 and then running to let the old year out the back door. We will bang pots and pans with wooden spoons to scare away any evil spirits trying to get in on the goodness of the new year. And of course toast with champagne and cocktails, since I'm not in Egg Boot Camp yet. We are having neighbors over for cheese and deviled eggs (ha, lots of eggs) and butternut squash bisque and those cocktails. It will be a lovely way to end another fruitless year. A lovely way to usher in a new year and a new chance for family happiness.
Welcome, 2014. We welcome all good things that you may bring.
Happy New Year, folks! May 2014 be a fabulous year.
Follow me as I move beyond parenthood into childfree infertility resolution -- things may not have worked out how we'd hoped, but "success" is redefine-able!
Tuesday, December 31, 2013
Sunday, December 15, 2013
(Mostly) Fertility-Free Holidays (or, my attempts at surviving yet another holiday while infertile...)
Ah, Christmas. The most wonderful time of the year. No really, I am not entirely sarcastic here--I love Christmastime. I love decorating for Christmas, I love Christmas music, I love shopping for fun surprises for my loved ones. But holy cannoli, Christmas is a rough time for people struggling with infertility.
I have written about this before, but it doesn't make it any less true. Christmas, while a wonderful time of cheer and love and togetherness, is also a time of feeling alone and left out and incredibly sad.
Why?
So much of Christmas is about children. The joy of children writing to Santa, the joy of children picking out their Christmas tree, the joy of children decorating wonky cookies. There are so many facebook posts about how amazing Christmas is when you see it through your child's eyes. There are songs about childlike wonder. There are songs about an amazing baby (yes, I realize the whole holiday is actually about celebrating an amazing miracle baby). Facebook is a veritable visual bombing of babies in their cute outfits, staring at the tree, decorating the tree, dressed up like a tree. Don't get me wrong--I don't have a problem with this. It just makes a body feel really left out when this is not what's happening in your house. And I know you don't have to have kids to enjoy Christmas, that's just silly. But imagine if all that joy and happiness and laughter and magic was something you desperately wanted and you could not at this point in time have it, and every Christmas reminded you that time keeps marching on and your house is exactly the same.
Well, not exactly the same.
Last year we shook things up a bit. We ditched everyone and took off to Vermont for Christmas. We felt naughty. We felt a tad selfish. And then we got there and experienced a Christmas where there's no tree with no toys for good little girls and boys beneath it, and no sense of old traditions that are empty. Just new traditions that are being forged. Christmas away is actually a lovely thing, once you get used to not having a Christmas tree of your own to come down the stairs to. It helps us to have a romantic couple vacation, to celebrate the season with our love for each other, and to not surround ourselves with our empty, silent house. (Bryce is probably snickering somewhere at the thought that our house is "empty" since he is continually on a decluttering mission, but it's devoid of the joyful chaos of babies and children. Totally full of stuff despite his best efforts to make it look like a sparse Scandinavian house.) We make memories together that don't make us sad, and save the traditions for when we can share them with little people of our own, however they end up coming to us.
And they won't be coming to us quite yet, because...
We do not do fertility treatments over the holidays. We have done that before, and it is a horrible disaster. I'm sure for some people it could mean a personal Christmas miracle, but for us it just compounded heartache and increased stress and made the holidays unenjoyable. Even now, as our "last hurrah" is upon us, and time is ticking away, this holiday time is sacred. No treatments. No testing. It is worth waiting a month more. It is worth missing a few months of opportunity to keep that sanity and good cheer intact.
Good cheer is often spread through the annual Holiday Card. We have done a photo card every single year since we were married. I love those things. But the past few cards have been upsetting, because they are babyless. Bumpless, even. Every year chronicles a year of fun together, but still no wee one. Going along with the whole Bryce-loves-to-declutter thing, I would love to have shared pictures of each card with you in this post, but unfortunately they were misplaced. In an effort to declutter. A closet. Yup, the cards were in a little shutterfly box in a closet but they needed to be put away even further. Can you sense my frustration? So, you will just have to imagine the cards as I describe them:
Year One, 2009: Fun wedding photos. Celebratory card. All is good with the world.
Year Two, 2010: Pictures of Maine vacation. Fun photos, a little bitterness over no baby to be seen, but not unreasonable after one year, so we add the dog and cats to the card.
Year Three, 2011: Frustration mounting. No Maine vacation this year due to infertility, hearts broken by ectopic debacle, and so we stage a "glamour shot" attempt with the digital camera and the kindness of strangers. I realize there is quite a bit of boob on the card, but don't care because there's still no baby.
Year Four, 2012: Frustration is palpable. WHY IS THERE NO BABY ON THIS EFFING CARD??? Reeling from miscarriage this year and realization that genetic material is now up for grabs. Cheeky mistletoe shot in 1950s dress and Bryce in 50s-ish collared shirt and sweater. Cats in bowties, not just named but featured. Copy of card sent to fertility clinic with actual message, "I AM NOT RESPONSIBLE FOR WHAT HAPPENS IF THERE'S NO BABY ON THIS CARD NEXT YEAR. PLEASE PUT A BABY ON THIS CARD!!!"
Year Five, 2013: I did not want to send a Christmas card this year. I had decided last year was the LAST YEAR for a babyless card at Christmas. I had all kinds of insane ideas (including pictures of embryos around the card, Merry Christmas spelled out in needles, etc.) but none I'd actually do in earnest. So I decided we'd do a New Year's card. A card about hope for the next year, not the disappointment of what didn't happen this past year. Not that there's not a lot to be grateful for and happy about this past year, but it was another year where the summer Maine vacation did not happen (and was actually cancelled last minute thanks to the donor cycle timing that we could not control whatsoever), another year where despite our best efforts we did not expand our family, another year of heartache and stagnancy and watching the cards roll in with SCHOOL AGE children on them, not babies anymore. (NOTE: I do want your Christmas cards! Keep 'em coming! Time marches on for you, and not for me, which makes me sad, but shared photos of your families and pets do not make me sad.)
And so... New Year's Card. Like the Vermont trip, it is a departure from the normal tradition to preserve that for our futurefamily, and a creation of a new tradition to soothe our ravaged souls. I was originally going to send it out after Christmas, but guilt over all the cards coming in and obsessive-compulsiveness won out. I put the card together this weekend. A message of Cheer All Year! With 10 photos from this past year around it. I did not include the cats (mostly because they refuse to be photographed together and they typically are only photographed when doing weird things), but did sign their names. It is a card of remembering the good stuff that happened this past year. And on the back we wish for a fabulous 2014 to come. Where dreams come true. And the photo is my "Never Never Never Give Up" magnet. Because I cannot let this card go without in some way intimating the truth--it is highly upsetting that there are no babies on this card in any way shape or form. It is not by choice. We have traveled the path that was supposed to treat our medical disease of infertility, and it took us on a bit of a wonky side tour. This year we are pursuing one more medical treatment, one last hurrah, before we put the medical side of things to bed and pursue adoption. The NEVER GIVE UP means that we don't give up on being parents. We will make this happen, somehow. It may not be medical. We may need to let go of some dreams to achieve the ultimate dream. It is not easy. None of this has been easy. But you can only travel your own path, and go where your hearts take you. And so we nod to infertility on our New Year's card.
We started a new tradition this year. Our neighborhood sponsors families in need each year, and each year in the hustle and bustle of things we forget and miss the deadline and feel like horrible people. I mean, I always donate books to the Ronald McDonald House at Barnes&Noble, and I put dollars in the red kettle, and I contribute to other things, but we have never actively shopped for a child in need. This year, we participated. We bought things for two little girls. You would think it would be sad to go shopping for children that aren't ours, and for a brief moment where I held adorable baby dresses in my hands it was, but it was an incredible joy to shop for these children. I mean, I shop for children every year because of friends who have kids. But in this case, we were shopping for children we didn't really know, and it was to give them a fabulous Christmas in tough times. We could take our good fortune and spread it about and give joy and imagine (as it would be creepy to track down the families and peer in their windows on Christmas morning) the sheer happiness that these girls will have when they open their presents straight from their wish lists. We got to play Santa, and it was immensely fun.
There you have it. Let old traditions go for a while so that we can forge new ones and save our sanity in these difficult times. Save magic for the future. Preserve as much as we can so that we can be the best parents to our FutureBaby(ies). Feed our love and keep the demons of doubt and despair at bay. Try not to throw things when commercials and/or facebook posts tout that you don't know what Christmas is until you've experienced it through the eyes of your child or you've had a baby or whatever. Enjoy celebrating with friends and family before and after the holiday, and over the phone or skype or facetime. Honor our families but stoke the fire of our little family of two. Get away from it all and try to have as fertility-free a holiday as we can when infertility has infiltrated the very essence of who we are. Somehow though, when you are away for the holiday and the stress of the house and responsibility and all that is gone...you can almost pretend that all is right with the world. Because in that moment, that beautiful, romantic, peaceful moment away from it all, it truly is.
Happy holidays to you and yours. May 2014 be the year that dreams come true and hearts are healed.
I have written about this before, but it doesn't make it any less true. Christmas, while a wonderful time of cheer and love and togetherness, is also a time of feeling alone and left out and incredibly sad.
Why?
So much of Christmas is about children. The joy of children writing to Santa, the joy of children picking out their Christmas tree, the joy of children decorating wonky cookies. There are so many facebook posts about how amazing Christmas is when you see it through your child's eyes. There are songs about childlike wonder. There are songs about an amazing baby (yes, I realize the whole holiday is actually about celebrating an amazing miracle baby). Facebook is a veritable visual bombing of babies in their cute outfits, staring at the tree, decorating the tree, dressed up like a tree. Don't get me wrong--I don't have a problem with this. It just makes a body feel really left out when this is not what's happening in your house. And I know you don't have to have kids to enjoy Christmas, that's just silly. But imagine if all that joy and happiness and laughter and magic was something you desperately wanted and you could not at this point in time have it, and every Christmas reminded you that time keeps marching on and your house is exactly the same.
Well, not exactly the same.
Last year we shook things up a bit. We ditched everyone and took off to Vermont for Christmas. We felt naughty. We felt a tad selfish. And then we got there and experienced a Christmas where there's no tree with no toys for good little girls and boys beneath it, and no sense of old traditions that are empty. Just new traditions that are being forged. Christmas away is actually a lovely thing, once you get used to not having a Christmas tree of your own to come down the stairs to. It helps us to have a romantic couple vacation, to celebrate the season with our love for each other, and to not surround ourselves with our empty, silent house. (Bryce is probably snickering somewhere at the thought that our house is "empty" since he is continually on a decluttering mission, but it's devoid of the joyful chaos of babies and children. Totally full of stuff despite his best efforts to make it look like a sparse Scandinavian house.) We make memories together that don't make us sad, and save the traditions for when we can share them with little people of our own, however they end up coming to us.
And they won't be coming to us quite yet, because...
We do not do fertility treatments over the holidays. We have done that before, and it is a horrible disaster. I'm sure for some people it could mean a personal Christmas miracle, but for us it just compounded heartache and increased stress and made the holidays unenjoyable. Even now, as our "last hurrah" is upon us, and time is ticking away, this holiday time is sacred. No treatments. No testing. It is worth waiting a month more. It is worth missing a few months of opportunity to keep that sanity and good cheer intact.
Good cheer is often spread through the annual Holiday Card. We have done a photo card every single year since we were married. I love those things. But the past few cards have been upsetting, because they are babyless. Bumpless, even. Every year chronicles a year of fun together, but still no wee one. Going along with the whole Bryce-loves-to-declutter thing, I would love to have shared pictures of each card with you in this post, but unfortunately they were misplaced. In an effort to declutter. A closet. Yup, the cards were in a little shutterfly box in a closet but they needed to be put away even further. Can you sense my frustration? So, you will just have to imagine the cards as I describe them:
Year One, 2009: Fun wedding photos. Celebratory card. All is good with the world.
Year Two, 2010: Pictures of Maine vacation. Fun photos, a little bitterness over no baby to be seen, but not unreasonable after one year, so we add the dog and cats to the card.
Year Three, 2011: Frustration mounting. No Maine vacation this year due to infertility, hearts broken by ectopic debacle, and so we stage a "glamour shot" attempt with the digital camera and the kindness of strangers. I realize there is quite a bit of boob on the card, but don't care because there's still no baby.
Year Four, 2012: Frustration is palpable. WHY IS THERE NO BABY ON THIS EFFING CARD??? Reeling from miscarriage this year and realization that genetic material is now up for grabs. Cheeky mistletoe shot in 1950s dress and Bryce in 50s-ish collared shirt and sweater. Cats in bowties, not just named but featured. Copy of card sent to fertility clinic with actual message, "I AM NOT RESPONSIBLE FOR WHAT HAPPENS IF THERE'S NO BABY ON THIS CARD NEXT YEAR. PLEASE PUT A BABY ON THIS CARD!!!"
Year Five, 2013: I did not want to send a Christmas card this year. I had decided last year was the LAST YEAR for a babyless card at Christmas. I had all kinds of insane ideas (including pictures of embryos around the card, Merry Christmas spelled out in needles, etc.) but none I'd actually do in earnest. So I decided we'd do a New Year's card. A card about hope for the next year, not the disappointment of what didn't happen this past year. Not that there's not a lot to be grateful for and happy about this past year, but it was another year where the summer Maine vacation did not happen (and was actually cancelled last minute thanks to the donor cycle timing that we could not control whatsoever), another year where despite our best efforts we did not expand our family, another year of heartache and stagnancy and watching the cards roll in with SCHOOL AGE children on them, not babies anymore. (NOTE: I do want your Christmas cards! Keep 'em coming! Time marches on for you, and not for me, which makes me sad, but shared photos of your families and pets do not make me sad.)
And so... New Year's Card. Like the Vermont trip, it is a departure from the normal tradition to preserve that for our futurefamily, and a creation of a new tradition to soothe our ravaged souls. I was originally going to send it out after Christmas, but guilt over all the cards coming in and obsessive-compulsiveness won out. I put the card together this weekend. A message of Cheer All Year! With 10 photos from this past year around it. I did not include the cats (mostly because they refuse to be photographed together and they typically are only photographed when doing weird things), but did sign their names. It is a card of remembering the good stuff that happened this past year. And on the back we wish for a fabulous 2014 to come. Where dreams come true. And the photo is my "Never Never Never Give Up" magnet. Because I cannot let this card go without in some way intimating the truth--it is highly upsetting that there are no babies on this card in any way shape or form. It is not by choice. We have traveled the path that was supposed to treat our medical disease of infertility, and it took us on a bit of a wonky side tour. This year we are pursuing one more medical treatment, one last hurrah, before we put the medical side of things to bed and pursue adoption. The NEVER GIVE UP means that we don't give up on being parents. We will make this happen, somehow. It may not be medical. We may need to let go of some dreams to achieve the ultimate dream. It is not easy. None of this has been easy. But you can only travel your own path, and go where your hearts take you. And so we nod to infertility on our New Year's card.
We started a new tradition this year. Our neighborhood sponsors families in need each year, and each year in the hustle and bustle of things we forget and miss the deadline and feel like horrible people. I mean, I always donate books to the Ronald McDonald House at Barnes&Noble, and I put dollars in the red kettle, and I contribute to other things, but we have never actively shopped for a child in need. This year, we participated. We bought things for two little girls. You would think it would be sad to go shopping for children that aren't ours, and for a brief moment where I held adorable baby dresses in my hands it was, but it was an incredible joy to shop for these children. I mean, I shop for children every year because of friends who have kids. But in this case, we were shopping for children we didn't really know, and it was to give them a fabulous Christmas in tough times. We could take our good fortune and spread it about and give joy and imagine (as it would be creepy to track down the families and peer in their windows on Christmas morning) the sheer happiness that these girls will have when they open their presents straight from their wish lists. We got to play Santa, and it was immensely fun.
There you have it. Let old traditions go for a while so that we can forge new ones and save our sanity in these difficult times. Save magic for the future. Preserve as much as we can so that we can be the best parents to our FutureBaby(ies). Feed our love and keep the demons of doubt and despair at bay. Try not to throw things when commercials and/or facebook posts tout that you don't know what Christmas is until you've experienced it through the eyes of your child or you've had a baby or whatever. Enjoy celebrating with friends and family before and after the holiday, and over the phone or skype or facetime. Honor our families but stoke the fire of our little family of two. Get away from it all and try to have as fertility-free a holiday as we can when infertility has infiltrated the very essence of who we are. Somehow though, when you are away for the holiday and the stress of the house and responsibility and all that is gone...you can almost pretend that all is right with the world. Because in that moment, that beautiful, romantic, peaceful moment away from it all, it truly is.
Happy holidays to you and yours. May 2014 be the year that dreams come true and hearts are healed.
Saturday, November 30, 2013
So Much to be Thankful For (except that one incredibly important thing...)
Thanksgiving is over, and now I can officially begin the Christmas Music Onslaught that Bryce enjoys so much. I even gave him a present--I did not begin until today, a full day later than I am technically "legally" allowed to fa-la-la-la-la. Probably because yesterday was Family Thanksgiving, and it was very confusing to my Christmas circadian clock to eat turkey and ham and yams and pumpkin pie and listen to Christmas music at the same time.
We were supposed to go to Maine this year for Thanksgiving with Bryce's mom and stepfather, but that stupid storm-naming thing scared us off. Between the snow here (mostly Tuesday night) and the torrential rain there (two storms collide!), we all decided it would be better to visit in February, when we can stay longer than 2 full days and not have to wrassle with evil holiday traffic on a very, very long drive. I felt badly, but we used FaceTime to connect face to face and while it wasn't quite the same, it was nice.
Yesterday was Thanksgiving with my mom and stepfather and my sister, her husband, and her stepsons. It was lovely. We had crackers (normally a Christmas thing but my Mom found Thanksgiving ones and it was actually quite fun:
On Thanksgiving proper, Bryce and I had an incredibly low-key day. Just the two of us for most of the day, in sweatpants for the duration. We made the Thanksgiving Cow--a delicious red-wine-based French country beef stew that takes most of the day to cook. So yummy over mashed potatoes. We had wine. We had relaxation. We had the neighbors over for champagne and pie later in the evening. And then we ended the night sitting in our TV room, listening to music through Bryce's speakers that he built himself (and are incredibly impressive if I do say so myself--both in design with their beautiful walnut tops and sides and the acoustic science that went into the sound). We sat on the couch and listened to cd after cd, picking out individual instruments now audible thanks to Bryce's audio wizardry. And all of a sudden I started to cry.
All I could think was, "I have so, so much to be thankful for. We have this wonderful life--we have each other, we have good food and good wine pretty much all the time, we have good friends and good family, we have a cozy home with comforts galore, we can have a great time just sitting here and enjoying music on speakers that Bryce made himself and be content. IF NOT FOR THIS GINORMOUS BABY-SHAPED HOLE IN OUR LIVES, we could be truly content."
The tears rolled down my face and I couldn't put this sentiment into words, so all of a sudden Bryce was worried that he had said something or NOT said something that had put me in a bit of a funk. He told me I looked sad all day. In actuality, I was pretty happy all day, but it is really, really hard to try to shove that one missing thing to the background and enjoy a holiday that is supposed to be all about family (and food and wine). I did not realize that Thanksgiving is such a baby-centered holiday--that going on Facebook would result in an onslaught of babies in turkey outfits and "Baby's First Thanksgiving" captions and onesies and homemade memes. It also reminds me of the Christmas card situation, which I am working on but still puts little needles in my soul for not having a baby or even a babyling anywhere near it. AGAIN.
I am thankful for so much, but this gaping nothingness where OUR family ought to be is like a black hole that sucks light and joy right into it. I can hang on with my fingernails and try not to get sucked in, but man the holidays are hard. I am grateful for my extended family, I am grateful for my wonderful husband, I am grateful for our home, I am grateful for our jobs, I am grateful for our health...the list goes on and on. I am grateful that my father had a physical last Friday and he was able to catch the severe anemia that put him in the hospital for days with multiple blood transfusions and no answers for why this is happening to him. Anemia is what got his Celiac diagnosed, but now he's been gluten free for years and years, so why? Why was it so severe that he was told had it not been caught when it was he would have likely dropped of a cardiac arrest or a stroke? So scary. So frustrating that despite all of the wonders of medical technology there seems to be an awful lot that doctor's can't figure out. I am grateful that my dad is ok. I am scared that that may not always be the case. And, like a horrible, selfish person, anytime someone in my family falls ill I mourn the fact that there is a real possibility that they may not see me become a mom. Somewhat melodramatic when it comes to my dad, but then again, not really. There are no guarantees in life. It's so frustrating.
We are in this strange limbo, where we know we are going to do ONE LAST TRY. We know that we are giving medical treatment a last go of it, and I am going to try to not be nauseous about giving myself injections again, as we are likely going back to my eggs. Which I hope is not a mistake. I am going to try not to dread turning my kitchen counter into a nurse's station, with sharps containers and many different size needles and medications. I am going to be grateful that I am pretty much never doing PIO again. My hips and thighs are STILL numb, and at times downright painful with stabby-ness that comes and goes. Maybe that's a good sign? Maybe that means feeling is returning? All I can say is it makes exercising mighty challenging. Any jolt to my legs ranges from very uncomfortable to painful. My husband can playfully smack my ass in the kitchen and have it result in tears from the pain jolting down my leg. Fun times. We have one more second opinion to go, and are waiting on a report from our second second opinion. We have hope, which seems more and more to be less of a friend and more of a friendly neighborhood crack dealer, but whatever.
We are not trying anything until after January. Which means that this is a fertility-free holiday--as much as I can keep that swirling black hole of babylessness at bay. We are free to eat and drink whatever, because we will not be doing a cycle any earlier than March. Because I need three months to get my ovaries in shape, since they've been out of the equation for so long. After the holidays, that means a whole lot of deprivation for me. A whole lot of acupuncture appointments. Three months of this monklike existence to hopefully end in the joy we seek. I am grateful that we have this opportunity. I am grateful that we can give this one last try. I will try not to read too much into it. I will just do everything possible to stack our deck, and try so hard not to lose my marbles in the process. I will try next year to be the recipient of a group post on FaceBook for ladies from yoga past, one mentioning "Don't Stop Believing," and NOT be the only one on that list who is not finally a mommy. It was meant well, but realizing that everyone on that list had been successful EXCEPT me was incredibly painful. Again, I feel like the Little Match Girl, with my frozen nose pressed against the frosted glass, peering in on a warm family life while slowly freezing to death. Conversely, I felt very lucky twice in the past week and a half to have my friends who, unfortunately, are pressing up on that cold glass with me. One who sent me a beautiful flower arrangement for "being in her brain" through my blog posts (something that made me feel good that I could accurately depict this hideous space of being, and also sad that my heartbreak and hope and souring relationship with fertility treatments echoed so closely for her). One who I had a 3+ hour coffee date with to talk and sufficiently horrify any other patrons at the coffee shop who weren't prepared to eavesdrop on a conversation regarding uteruses and sex after infertility and fear of failure and how identity is so mixed up in this process and blood clotting disorders and sperm. Sorry, patrons of Starry Nights Cafe. It was worth it to share that space with my friend, despite what a sad and hopeful and furious space it is. In a weird way it is very comforting to have people who still share this space with me. (God I feel guilty putting that out there!) We are a tattered band of Match Girls. Instead of dying with a spent match in hand, we will ninja kick our way through that glass one day. Much better end to the fairy tale.
There it is, all my Thanksgiving thoughts for this year. I am thankful for so much, and yet still yearning for so much that shouldn't be so hard to grasp onto. I am grateful for my marriage and my home and my family. I yearn for the family that we create, in whatever way that ends up being. I honestly have no idea but am exceedingly grateful for the options and opportunities out there. I am thankful for the capacity to still find space in my heart for thankfulness and gratitude, when at times it feels like, at this point in loss and pain and disappointment, my heart should be withered and atrophied. But nope, still have space for love and gratitude in there. Still have space for hope. Still have space for that special, tardy little soul who is meant to be placed in our keeping. We're ready, we're waiting, we've left a whole lot of love set aside just for you, FutureBaby.
We were supposed to go to Maine this year for Thanksgiving with Bryce's mom and stepfather, but that stupid storm-naming thing scared us off. Between the snow here (mostly Tuesday night) and the torrential rain there (two storms collide!), we all decided it would be better to visit in February, when we can stay longer than 2 full days and not have to wrassle with evil holiday traffic on a very, very long drive. I felt badly, but we used FaceTime to connect face to face and while it wasn't quite the same, it was nice.
Yesterday was Thanksgiving with my mom and stepfather and my sister, her husband, and her stepsons. It was lovely. We had crackers (normally a Christmas thing but my Mom found Thanksgiving ones and it was actually quite fun:
Here we are being all dramatic in our paper crowns... Please excuse the upward camera angle and how unflattering it is! |
All I could think was, "I have so, so much to be thankful for. We have this wonderful life--we have each other, we have good food and good wine pretty much all the time, we have good friends and good family, we have a cozy home with comforts galore, we can have a great time just sitting here and enjoying music on speakers that Bryce made himself and be content. IF NOT FOR THIS GINORMOUS BABY-SHAPED HOLE IN OUR LIVES, we could be truly content."
The tears rolled down my face and I couldn't put this sentiment into words, so all of a sudden Bryce was worried that he had said something or NOT said something that had put me in a bit of a funk. He told me I looked sad all day. In actuality, I was pretty happy all day, but it is really, really hard to try to shove that one missing thing to the background and enjoy a holiday that is supposed to be all about family (and food and wine). I did not realize that Thanksgiving is such a baby-centered holiday--that going on Facebook would result in an onslaught of babies in turkey outfits and "Baby's First Thanksgiving" captions and onesies and homemade memes. It also reminds me of the Christmas card situation, which I am working on but still puts little needles in my soul for not having a baby or even a babyling anywhere near it. AGAIN.
I am thankful for so much, but this gaping nothingness where OUR family ought to be is like a black hole that sucks light and joy right into it. I can hang on with my fingernails and try not to get sucked in, but man the holidays are hard. I am grateful for my extended family, I am grateful for my wonderful husband, I am grateful for our home, I am grateful for our jobs, I am grateful for our health...the list goes on and on. I am grateful that my father had a physical last Friday and he was able to catch the severe anemia that put him in the hospital for days with multiple blood transfusions and no answers for why this is happening to him. Anemia is what got his Celiac diagnosed, but now he's been gluten free for years and years, so why? Why was it so severe that he was told had it not been caught when it was he would have likely dropped of a cardiac arrest or a stroke? So scary. So frustrating that despite all of the wonders of medical technology there seems to be an awful lot that doctor's can't figure out. I am grateful that my dad is ok. I am scared that that may not always be the case. And, like a horrible, selfish person, anytime someone in my family falls ill I mourn the fact that there is a real possibility that they may not see me become a mom. Somewhat melodramatic when it comes to my dad, but then again, not really. There are no guarantees in life. It's so frustrating.
We are in this strange limbo, where we know we are going to do ONE LAST TRY. We know that we are giving medical treatment a last go of it, and I am going to try to not be nauseous about giving myself injections again, as we are likely going back to my eggs. Which I hope is not a mistake. I am going to try not to dread turning my kitchen counter into a nurse's station, with sharps containers and many different size needles and medications. I am going to be grateful that I am pretty much never doing PIO again. My hips and thighs are STILL numb, and at times downright painful with stabby-ness that comes and goes. Maybe that's a good sign? Maybe that means feeling is returning? All I can say is it makes exercising mighty challenging. Any jolt to my legs ranges from very uncomfortable to painful. My husband can playfully smack my ass in the kitchen and have it result in tears from the pain jolting down my leg. Fun times. We have one more second opinion to go, and are waiting on a report from our second second opinion. We have hope, which seems more and more to be less of a friend and more of a friendly neighborhood crack dealer, but whatever.
We are not trying anything until after January. Which means that this is a fertility-free holiday--as much as I can keep that swirling black hole of babylessness at bay. We are free to eat and drink whatever, because we will not be doing a cycle any earlier than March. Because I need three months to get my ovaries in shape, since they've been out of the equation for so long. After the holidays, that means a whole lot of deprivation for me. A whole lot of acupuncture appointments. Three months of this monklike existence to hopefully end in the joy we seek. I am grateful that we have this opportunity. I am grateful that we can give this one last try. I will try not to read too much into it. I will just do everything possible to stack our deck, and try so hard not to lose my marbles in the process. I will try next year to be the recipient of a group post on FaceBook for ladies from yoga past, one mentioning "Don't Stop Believing," and NOT be the only one on that list who is not finally a mommy. It was meant well, but realizing that everyone on that list had been successful EXCEPT me was incredibly painful. Again, I feel like the Little Match Girl, with my frozen nose pressed against the frosted glass, peering in on a warm family life while slowly freezing to death. Conversely, I felt very lucky twice in the past week and a half to have my friends who, unfortunately, are pressing up on that cold glass with me. One who sent me a beautiful flower arrangement for "being in her brain" through my blog posts (something that made me feel good that I could accurately depict this hideous space of being, and also sad that my heartbreak and hope and souring relationship with fertility treatments echoed so closely for her). One who I had a 3+ hour coffee date with to talk and sufficiently horrify any other patrons at the coffee shop who weren't prepared to eavesdrop on a conversation regarding uteruses and sex after infertility and fear of failure and how identity is so mixed up in this process and blood clotting disorders and sperm. Sorry, patrons of Starry Nights Cafe. It was worth it to share that space with my friend, despite what a sad and hopeful and furious space it is. In a weird way it is very comforting to have people who still share this space with me. (God I feel guilty putting that out there!) We are a tattered band of Match Girls. Instead of dying with a spent match in hand, we will ninja kick our way through that glass one day. Much better end to the fairy tale.
There it is, all my Thanksgiving thoughts for this year. I am thankful for so much, and yet still yearning for so much that shouldn't be so hard to grasp onto. I am grateful for my marriage and my home and my family. I yearn for the family that we create, in whatever way that ends up being. I honestly have no idea but am exceedingly grateful for the options and opportunities out there. I am thankful for the capacity to still find space in my heart for thankfulness and gratitude, when at times it feels like, at this point in loss and pain and disappointment, my heart should be withered and atrophied. But nope, still have space for love and gratitude in there. Still have space for hope. Still have space for that special, tardy little soul who is meant to be placed in our keeping. We're ready, we're waiting, we've left a whole lot of love set aside just for you, FutureBaby.
Our Thanksgiving picture, hazed out from searing beef cubes and Bryce looking puffy-eyed from the sliced shallots. Come on, FutureBaby. You know you want in on this wonderful life! |
Saturday, November 23, 2013
Thankful November--Choice
In years past, I did not so much participate in Thankful November. For those who don't already know, this is a thing where you post (on FaceBook) something you are thankful for every day in November. I am still in my love/hate relationship with FaceBook, and I thought this year would be a good one to consciously try to publicly acknowledge the things I am thankful for each and every day. You don't need FaceBook for this, really--you could just meditate a bit on what you are thankful for every day, but it's kind of nice to add something meaningful to the countless memes, selfies, blow-by-blows of household chores, and baby photos. Oh, so many baby photos. Sometimes my thankfulness posts have been on the facetious side (I am thankful for Uncle Woody's caramel popcorn... mmmm that is good stuff), frequently food-related. Sometimes mine have been love letters to my husband, because he deserves them. And sometimes they have been infertility related. I am thankful for hope. I am thankful for support. I am thankful for nonjudgmentalness. (Not a word, but whatever.) I am thankful for friends. I am thankful for family.
Several days ago, I started to type in, "I am thankful for choices." I was going to say, "I am thankful for choices. They may not always be easy, but I am thankful that they exist." And then...I could not do it.
Am I thankful for choices?
In one way, HELL YES. I am forever grateful for the medical technology that exists that makes it possible for me to still be batting around the idea of motherhood via pregnancy. Decades ago, I would have had to decide between living child-free and adoption long ago. I would not have had a way to treat my medical condition. I would not have reason for the hope I have that maybe I could be pregnant and birth our child.
On the other hand, having these choices has turned into a bit of a double-edged sword. Because there is so much medical technology out there, the carrot continues to dangle. The promise of one more cycle leading to "our miracle" is out there, gleaming on the horizon. Or glinting. Perhaps with a bit of a taunt in that eyeshine. I find it incredibly difficult to move on when this possibility exists. I am not stupid, but I am stubborn. To have the consult with CCRM and the first of our two semi-local consults result in the feeling that another cycle with different components (be they medications or gametes) could be our ticket to success was both encouraging and...not. Because in a weird way, I think we were almost hoping that we would be told "forget it, this will not happen for you." But we weren't. We were told, "perhaps you have been barking up the wrong tree. Perhaps a bit more tweaking will end this godawful losing streak." With percentages that still aren't 100%, but are high enough to give me pause. How can I let that go? How can I not give that a shot? A "last hurrah" if you will?
Am I willing to put myself through this punishing promise for the hope that I will finally have my miracle? I have enough choices that it is possible for me to believe this is the case. We have options. We have tests that haven't been done yet, and treatment options we haven't tried yet. It's not out of the realm of possibility. We could end on a high note and go home with our precious baby that I baked myself. How many times do we hear the miracle stories of women who tried and tried and tried and right when they were ready to move on (usually phrased as "give up"), they got pregnant. I've heard this story. I've seen it firsthand from actual people, not internet myths or friends-of-friends-of-friends. But does that mean it will be me? How many times have I thought this is my time? I'll tell you. 8 times. The last 4 were among the "We have suffered enough. This is our time, it has to be." Nope, it does not have to be anything. It is possible to suffer. And suffer. And suffer.
I have another choice. I can choose to end this right now, to leave the stone unturned, and to pick another path. A path that has its own uncertainties, but a new path to learn about and research and journey down, one that WILL result in a baby. So why can't I pick it right now?
Because I have too many choices.
Because I need to throw myself into this last hurrah. After realizing that there is a stone, a big fat, hulking stone, left hideously unturned, I must push it over. I must know if hope lies beneath it, and the reality of parenthood somewhat how we dreamed it years ago when we first decided to have a family together. I must do this last thing, and I do mean LAST, to know that I did everything. Writing it now it sounds so silly. I have done so, so, so much leading up to this point. I have taken shots in the thigh and sustained nerve damage in my hips and legs. I have researched so much that when I look into a new therapy and there is a choice between "Women and Families" and "Physicians," I pick the "Physicians" side, hands down. Don't dumb it down for me. I want to know the language of power so that I can converse with doctors in their language. I have done so many things, sane and not so sane, to try to make this work. And it hasn't. But...I feel we have enough information that is new that I think we've missed something.
However--if we do all the tests and they all come back showing normal everything... that will put a chink in my well-armored reserve to hit me baby one more time. We need to have enough different that we truly feel that we are not beating a nearly-dead horse. Otherwise, that door can creak shut so that I can fling myself into the new door. Right now I feel that I have two feet, one in each door. I have these two choices and they both have their merits.
Monday we went to the adoption agency orientation. It was amazing. It was very hopeful, very positive--everything pointing to a resolution and a family within our reach. I teared up many times. I felt moved. I felt... I could DO THIS.
So why am I not? Not right now, anyway?
Because on Wednesday we had another second opinion at a clinic about an hour away. It was also very hopeful, very positive. This clinic can do many of the insanely cool things CCRM can do, and was open to many different options. And the pricing was phenomenal. We could do our last shot here without too much damage to our financial ability to afford adoption. It was another good choice.
But.
I am really struggling. This is kind of a stream of consciousness post, because I don't really know where I'm going. Sooner or later, I need to close the door on treatment and I understand that I will likely have to be the one to do it. I just have the hardest time thinking that I can leave treatment behind when I have done all 8 of our transfers with the same clinic. We need a bit of innovation. I need to know that we didn't just go with what was cozy. Given a cancer diagnosis, you would never just go with one clinic if you weren't seeing results. You would fight for your life (given the ability). You would seek a second opinion. In hindsight, I feel like we should have committed to a second opinion earlier. But you live and learn. We are super loyal people and it is at times to our detriment. It's not too late. We can do a Hail Mary cycle elsewhere, give it our best go with different protocols and tests and technology, and see where we land. And then move on.
The question is, will it be worth it? I could decide to shut the door and get started on a homestudy process this month and be well on my way to bringing an infant home from the hospital. I could start a new journey with a new sense of hope and purpose. If only I could let go of the overwhelming desire to have us experience pregnancy and birth and maternity clothes and baby showers before the baby is here and setting up a nursery for a baby that is likely arriving on a known timetable (no guarantees though, given possibility of preterm labor and premature birth). I feel selfish saying this, like I want all the accoutrements when the important thing is the BABY, the FAMILY that we will have, and not the ruched tops and shooting merchandise with a laser gun. It's not just those material things. It's the feeling of being robbed of an experience we were supposed to have. That experience that exists all around us but may never come to fruition in the way we dreamed.
But is that so bad? To have your dream altered in its mode of arrival and gestation? To paraphrase a comment I received on my last blog, am I willing to sacrifice a year with my child in the effort to have that child in the way I dreamed it, even though that has already changed and been sacrificed in so many ways?
The choice of adoption is a very appealing one. I am very open to this option and grateful that we have such an amazing adoption agency in our area. But I know myself well enough to know that I cannot, CANNOT pursue both medical treatment and adoption at the same time. As much as it would "save time," I cannot do homestudy classes and an IVF cycle at the same time. I'm an all or nothing kind of gal, and I immerse myself utterly in what I'm pursuing. And what I'm pursuing, while flagging behind a bit, remains medical treatment for infertility. One last shot with a new team. I would not honestly be able to answer honestly that I have resolved my infertility and have committed to adoption without this "last hurrah." I think that is a good thing. I want to give the process my all. I want to be as devoted to adoption as I have been to medical treatment. I cannot split myself between the two choices equally. I just don't have it in me. It wouldn't be fair to anyone. I would always wonder. I may still wonder if we try something new and it doesn't work, but at least I will know I did all I was capable of doing. I think my FutureBaby could appreciate that--I want to honor his/her mode of arrival with all my being. And I can't do that with a foot in both worlds.
Bryce has been very supportive of my convoluted decision-making process. And I reserve the right to change my mind. I could get started on injections again and feel an overwhelming sense of WHY ARE YOU DOING THIS TO YOURSELF? A sense of WRONG. And then the choice will be clear. Or I could get into this new cycle and feel a new sense of hope with every stick and every painful, swollen follicle. I don't know. See what I mean about the choices?
I am grateful. I am grateful that these choices are there for me to make. Selfishly I wish that they weren't so that the path could be clear. But, really, when in life is the path EVER completely clear? There is so much room for regret, but that is a wasted emotion. I could already regret giving one clinic 8 cycles. But we did, and we don't regret it. It would have probably been a good idea to seek a second opinion before going DE IVF. We basically did a very expensive experiment. But there are never any guarantees. And it seemed the right decision at the time. And, actually, we learned something from it. Too bad we're not eccentric millionaires. One last shot. With another clinic. With new components (sorry frosty 2PNs, we may be putting you on the back burner first... I can't lose my endurance for needle sticks and ultrasounds with frozens that may or may not be any good based on everything so far). With the knowledge that our hearts are open to adoption once we can give it our all. It's all out of hope. And love. And respect. Respect for the tiny life that we long to be responsible for and love. Respect for not only our journey, but his or hers. I so wish it could be easier.
Several days ago, I started to type in, "I am thankful for choices." I was going to say, "I am thankful for choices. They may not always be easy, but I am thankful that they exist." And then...I could not do it.
Am I thankful for choices?
In one way, HELL YES. I am forever grateful for the medical technology that exists that makes it possible for me to still be batting around the idea of motherhood via pregnancy. Decades ago, I would have had to decide between living child-free and adoption long ago. I would not have had a way to treat my medical condition. I would not have reason for the hope I have that maybe I could be pregnant and birth our child.
On the other hand, having these choices has turned into a bit of a double-edged sword. Because there is so much medical technology out there, the carrot continues to dangle. The promise of one more cycle leading to "our miracle" is out there, gleaming on the horizon. Or glinting. Perhaps with a bit of a taunt in that eyeshine. I find it incredibly difficult to move on when this possibility exists. I am not stupid, but I am stubborn. To have the consult with CCRM and the first of our two semi-local consults result in the feeling that another cycle with different components (be they medications or gametes) could be our ticket to success was both encouraging and...not. Because in a weird way, I think we were almost hoping that we would be told "forget it, this will not happen for you." But we weren't. We were told, "perhaps you have been barking up the wrong tree. Perhaps a bit more tweaking will end this godawful losing streak." With percentages that still aren't 100%, but are high enough to give me pause. How can I let that go? How can I not give that a shot? A "last hurrah" if you will?
Am I willing to put myself through this punishing promise for the hope that I will finally have my miracle? I have enough choices that it is possible for me to believe this is the case. We have options. We have tests that haven't been done yet, and treatment options we haven't tried yet. It's not out of the realm of possibility. We could end on a high note and go home with our precious baby that I baked myself. How many times do we hear the miracle stories of women who tried and tried and tried and right when they were ready to move on (usually phrased as "give up"), they got pregnant. I've heard this story. I've seen it firsthand from actual people, not internet myths or friends-of-friends-of-friends. But does that mean it will be me? How many times have I thought this is my time? I'll tell you. 8 times. The last 4 were among the "We have suffered enough. This is our time, it has to be." Nope, it does not have to be anything. It is possible to suffer. And suffer. And suffer.
I have another choice. I can choose to end this right now, to leave the stone unturned, and to pick another path. A path that has its own uncertainties, but a new path to learn about and research and journey down, one that WILL result in a baby. So why can't I pick it right now?
Because I have too many choices.
Because I need to throw myself into this last hurrah. After realizing that there is a stone, a big fat, hulking stone, left hideously unturned, I must push it over. I must know if hope lies beneath it, and the reality of parenthood somewhat how we dreamed it years ago when we first decided to have a family together. I must do this last thing, and I do mean LAST, to know that I did everything. Writing it now it sounds so silly. I have done so, so, so much leading up to this point. I have taken shots in the thigh and sustained nerve damage in my hips and legs. I have researched so much that when I look into a new therapy and there is a choice between "Women and Families" and "Physicians," I pick the "Physicians" side, hands down. Don't dumb it down for me. I want to know the language of power so that I can converse with doctors in their language. I have done so many things, sane and not so sane, to try to make this work. And it hasn't. But...I feel we have enough information that is new that I think we've missed something.
However--if we do all the tests and they all come back showing normal everything... that will put a chink in my well-armored reserve to hit me baby one more time. We need to have enough different that we truly feel that we are not beating a nearly-dead horse. Otherwise, that door can creak shut so that I can fling myself into the new door. Right now I feel that I have two feet, one in each door. I have these two choices and they both have their merits.
Monday we went to the adoption agency orientation. It was amazing. It was very hopeful, very positive--everything pointing to a resolution and a family within our reach. I teared up many times. I felt moved. I felt... I could DO THIS.
So why am I not? Not right now, anyway?
Because on Wednesday we had another second opinion at a clinic about an hour away. It was also very hopeful, very positive. This clinic can do many of the insanely cool things CCRM can do, and was open to many different options. And the pricing was phenomenal. We could do our last shot here without too much damage to our financial ability to afford adoption. It was another good choice.
But.
I am really struggling. This is kind of a stream of consciousness post, because I don't really know where I'm going. Sooner or later, I need to close the door on treatment and I understand that I will likely have to be the one to do it. I just have the hardest time thinking that I can leave treatment behind when I have done all 8 of our transfers with the same clinic. We need a bit of innovation. I need to know that we didn't just go with what was cozy. Given a cancer diagnosis, you would never just go with one clinic if you weren't seeing results. You would fight for your life (given the ability). You would seek a second opinion. In hindsight, I feel like we should have committed to a second opinion earlier. But you live and learn. We are super loyal people and it is at times to our detriment. It's not too late. We can do a Hail Mary cycle elsewhere, give it our best go with different protocols and tests and technology, and see where we land. And then move on.
The question is, will it be worth it? I could decide to shut the door and get started on a homestudy process this month and be well on my way to bringing an infant home from the hospital. I could start a new journey with a new sense of hope and purpose. If only I could let go of the overwhelming desire to have us experience pregnancy and birth and maternity clothes and baby showers before the baby is here and setting up a nursery for a baby that is likely arriving on a known timetable (no guarantees though, given possibility of preterm labor and premature birth). I feel selfish saying this, like I want all the accoutrements when the important thing is the BABY, the FAMILY that we will have, and not the ruched tops and shooting merchandise with a laser gun. It's not just those material things. It's the feeling of being robbed of an experience we were supposed to have. That experience that exists all around us but may never come to fruition in the way we dreamed.
But is that so bad? To have your dream altered in its mode of arrival and gestation? To paraphrase a comment I received on my last blog, am I willing to sacrifice a year with my child in the effort to have that child in the way I dreamed it, even though that has already changed and been sacrificed in so many ways?
The choice of adoption is a very appealing one. I am very open to this option and grateful that we have such an amazing adoption agency in our area. But I know myself well enough to know that I cannot, CANNOT pursue both medical treatment and adoption at the same time. As much as it would "save time," I cannot do homestudy classes and an IVF cycle at the same time. I'm an all or nothing kind of gal, and I immerse myself utterly in what I'm pursuing. And what I'm pursuing, while flagging behind a bit, remains medical treatment for infertility. One last shot with a new team. I would not honestly be able to answer honestly that I have resolved my infertility and have committed to adoption without this "last hurrah." I think that is a good thing. I want to give the process my all. I want to be as devoted to adoption as I have been to medical treatment. I cannot split myself between the two choices equally. I just don't have it in me. It wouldn't be fair to anyone. I would always wonder. I may still wonder if we try something new and it doesn't work, but at least I will know I did all I was capable of doing. I think my FutureBaby could appreciate that--I want to honor his/her mode of arrival with all my being. And I can't do that with a foot in both worlds.
Bryce has been very supportive of my convoluted decision-making process. And I reserve the right to change my mind. I could get started on injections again and feel an overwhelming sense of WHY ARE YOU DOING THIS TO YOURSELF? A sense of WRONG. And then the choice will be clear. Or I could get into this new cycle and feel a new sense of hope with every stick and every painful, swollen follicle. I don't know. See what I mean about the choices?
I am grateful. I am grateful that these choices are there for me to make. Selfishly I wish that they weren't so that the path could be clear. But, really, when in life is the path EVER completely clear? There is so much room for regret, but that is a wasted emotion. I could already regret giving one clinic 8 cycles. But we did, and we don't regret it. It would have probably been a good idea to seek a second opinion before going DE IVF. We basically did a very expensive experiment. But there are never any guarantees. And it seemed the right decision at the time. And, actually, we learned something from it. Too bad we're not eccentric millionaires. One last shot. With another clinic. With new components (sorry frosty 2PNs, we may be putting you on the back burner first... I can't lose my endurance for needle sticks and ultrasounds with frozens that may or may not be any good based on everything so far). With the knowledge that our hearts are open to adoption once we can give it our all. It's all out of hope. And love. And respect. Respect for the tiny life that we long to be responsible for and love. Respect for not only our journey, but his or hers. I so wish it could be easier.
Saturday, November 16, 2013
Pretty Sure My Relationship With IVF Is An Abusive One
I am not really doing so well these days. My head is spinning with all the information we are sifting through, and my attempts at reining all this in with a multipoint "plan" have not really served to make me feel better. Today, while attempting to have breakfast over "The Daily Show" and instead having a nearly two-hour powwow over dippy eggs and bacon, I came to a realization. I am in an abusive relationship with infertility treatments.
Unfortunately, I know what it's like to be in an abusive relationship. Mostly emotional and verbal abuse, but with the occasional dash of physical thrown in. My first marriage was a disaster of epic proportions where there were pockets of really good stuff (I married the man after all, it couldn't have been all bad...) mixed in with a lot of "you stupid fat bitch," shoes kept by the door so I could run out at any given moment, a hollow core door that had a gaping hole in it from where I ran into my office to hide from my ranting other half and he was so pissed I locked it that he tried to kick it in, Nicole Kidman's smudged face on my living room wall from where a Glamour magazine was thrown at my head so hard that it left a transfer print on the wall behind me (lucky me he had shitty aim), and various threats to snap my neck whilst fighting. It was a pretty awful existence, not one that had me running for the abused women's shelter (I had very few bruises and no out-and-out "beatings," so I had a hard time considering it "abuse," but I think you will agree with me that it absolutely was), but one that had me occasionally debating with my damaged subconscious about the merits of divorce. I always tamped it away. I'd made my bed, yada yada yada. It could get better. To leave was scary, unknown. To stay was pretty close to scarier, but not quite. I could survive it. I didn't think it was bad enough to leave even when I left our apartment in Yonkers at 10:00 pm, hysterical and frantic, walked to the Mount Vernon West train station in a completely unobservant state and then, after taking the train up to White Plains, walked the 2 miles or so through not the best neighborhood, crying all the way, to my best friend's house. The sad thing was, after spending time sorting through the fight that I had fled from, I was upset mostly because I was afraid I was the one who would be left. Abusive relationships are horrible because of the fear and the physical and emotional pain, but also because they completely strip you of your dignity and sense of self. But they make you into one hell of an actress, capable of convincing (if not entirely) family and friends that you are ok when you are DEFINITELY NOT OK, and most of all, convincing yourself that you are ok and maybe you deserved the things that were said or hurled and everyone has their burdens to bear and some people are just fiery and any number of lame excuses that you hear coming out of your mouth as a tiny shred of your former self screams from the back of your subconscious, YOU HAVE BECOME A FREAKING LIFETIME MOVIE. THIS IS RIDICULOUS. YOU DESERVE MORE. But I didn't think I did. I needed something concrete to hold on to, that couldn't possibly be construed as me deserving what I got in any way, and that gift came as a realization of years of cheating on top of the screaming and insults and indignities and shakes and punches and hurling of objects in my general direction. Finally, something I could hold on to that definitively said, YOU MUST LEAVE THIS HORRID SITUATION. And I did, but years after I really should have.
Why am I sharing this with you? I don't really like talking about it so much, because it seems like a completely different life. Thank god, everything is so different now in most arenas that this seems like a bad dream that happened to someone else. But occasionally it hits me just how much I went through, and how much you can convince yourself that things aren't really that bad when they absolutely are. And this morning I made the realization that my relationship with IVF is really not that different from my relationship with a person who stripped me of self-respect, insulted me daily, and made me feel like I could do nothing right or well; yet somehow I was compelled to make a nice dinner and try my hardest to make the best of a less than ideal situation.
Friday I had my third ultrasound and blood draw as part of a ridiculous experiment with a natural cycle (monitoring only) for the purpose of seeing what my hormone levels and lining look like without meds. The answer: not much. I went in before school and knew that I would get in late but in time to teach 2nd period, but I had started bleeding again like a full period even though a normal person would be ovulating now and my estrogen really wasn't moving, which wasn't surprising since I had been spotting since my period started in late October and so this heavier bleeding was throwing me for a loop and pissing me off. I went in having decided that I was going to pull the plug on the whole thing and that no information on my levels was worth this torture since obviously I am dysfunctional (oh, I'm sorry, my REPRODUCTIVE ORGANS are dysfunctional) and obviously I need meds and we weren't going to do an IUI if I did miraculously make a follicle because we still aren't sure if my eggs are kosher or if Bryce's sperm is kosher and maybe my uterine lining is missing that protein and not implantation-friendly anyway. I was already on thin emotional ice. But then the blood draw was a bit of a disaster. My veins suck. They are tiny and reluctant and, probably, tired. My good vein was still bruised from Monday. So another vein was tried, but it was not producing anything and then I felt a stabby pain that was sharp and breathtaking, and the tears started rolling silently down my face. Another vein was tried in my forearm, one I was terrified of because I just KNEW it was going to be painful. It was. More tears. I was having a hard time keeping them back full force, and after my other arm was stabbed and it produced enough blood...I lost it. I kept thinking WHAT ARE YOU DOING? WHAT ARE YOU DOING? WHAT ARE YOU DOING? I can't take this anymore. At this moment in time, I felt such a complete and total sense of THIS IS WAY, WAY TOO MUCH FOR ME. And the tears kept coming. And then the sobs. And then I couldn't breathe and I was wracked with silent, squeaky, convulsive sobs. I was escorted to an exam room so that I could fall spectacularly apart in semi-privacy (I am pretty sure more than one patient witnessed this breakdown). A very supportive nurse practitioner stayed with me while I tried to pull my shit together. It took at least 20 minutes.
One of the things that threw me for a loop was a stupid Facebook meme. Someone had posted it the day before and it resonated with me and made me feel horribly lost and sad. It was "When one door closes another opens, but sometimes we spend so much time staring at the closed door that we do not notice the open one in front of us." I feel like IVF is not a closed door, but it's slowly creaking shut. My capacity to keep doing this is pretty freaking impaired. I am feeling like it is slowly killing me. But I don't yet have that AHA! revelation that lets me shut the door. I have to be the one to shut it. I have a partially open door in front of me, but I can't deal with two doors that are ajar. I need, NEED one to close. I need the in-person confession from the cheater and the pile of printed out emails that detail the affair. I'm too scared to make the leap myself.
It's not quite the same thing. I never sat in my old house and wondered, "What if all of a sudden my asshole husband becomes Prince Charming someday?" But I do sit here and wonder, "What if there is an answer for us, medically, and it is possible after all for me to become pregnant and birth our baby?" It's not impossible, supposedly. The question is, how many times do I need to keep my shoes by the door before I come to the conclusion that perhaps the medical route is not the best way for us to build our family?
I have invested so much into the medical path. I have overturned a lot of stones, only to come up empty, in every sense of the word. I have to be ok with the fact that I may never get the answer and the fix I so desperately seek. It's possible that next time could be THE time that gets us pregnant. There is always hope that things will get better, that we will have an answer. And then that hope is dashed, over and OVER and OVER again. For seemingly no reason.
In a way, I feel like infertility gives us just enough hope to be the flowers and nice treatment after a whopper of a fight that has left us bruised and shattered inside. I'm not quite ready to get a divorce, to shut that door myself. I am pretty freaking close, though. It is so hard to admit this, not because I think it is a failing, but because I feel failed. Robbed, really. Why should this be so hard when it is supposed to be just the way things work out? We want a family, and we want it sooner than later. It is so, so, so hard to realize that this medical business may not be the way to do that when we've been so gung-ho about it and had so much reasonable hope that this would not be the way things turned out. I don't want to prolong my childless home out of a sliver of hope that we might find the answer. If the answer means a lot more poking and prodding and blood draws like Friday's, I'm not sure I have anything left. As Bryce said this morning over our eggs that had grown a bit cold from all the heavy discussion, infertility has sucked so much away. It's all we talk about. It's all we know how to do anymore. It has become imbalanced, and we are so much more than blood draws and treatment options and possible silver bullets that turn out to be just more disappointment.
Where does this leave us? I honestly don't know. I know I don't know how much more I can take, physically or emotionally. I did manage to get back to school and go to the last 15 minutes of 2nd period and the teach the whole rest of the day. People are very understanding and it wasn't a problem, and if I had needed to go home and spend the rest of the day in bed I think I could have made that work. But I didn't want to. 8th graders are a strange balm for a shattered soul. I wasn't myself on Friday, that's for sure. But I did it. I made it through the day. I was kind of a good actress. As I told the teacher I share a room with, totally stealing from Clueless, I am a Monet today. From far away I look just fine, but get too close and I'm just a blurry mess. I had someone tell me I was incredibly strong. I agree, I am a strong person. I have to be. But at this point, is that more a blessing or a curse? Is my determination to make this work keeping me stuck in one door and when the other door may bring us the joy and love we long to give and share? It's entirely possible.
The plan continues, in the meantime. Another second opinion consult on Wednesday. The orientation with the adoption agency on Monday. Bloodwork is in progress to see if we are dealing with a translocation on Bryce's end. I'm not sure what to hope for here. I'm not sure what to do next. I do know that there is a definite limit on what I can do moving forward in terms of IVF. I am getting awfully close to being able to let go, to fling the other door wide open and leave this dysfunctional but ever appealing hope of success, no matter how slivery it may be at this point, behind.
One of the things that threw me for a loop was a stupid Facebook meme. Someone had posted it the day before and it resonated with me and made me feel horribly lost and sad. It was "When one door closes another opens, but sometimes we spend so much time staring at the closed door that we do not notice the open one in front of us." I feel like IVF is not a closed door, but it's slowly creaking shut. My capacity to keep doing this is pretty freaking impaired. I am feeling like it is slowly killing me. But I don't yet have that AHA! revelation that lets me shut the door. I have to be the one to shut it. I have a partially open door in front of me, but I can't deal with two doors that are ajar. I need, NEED one to close. I need the in-person confession from the cheater and the pile of printed out emails that detail the affair. I'm too scared to make the leap myself.
It's not quite the same thing. I never sat in my old house and wondered, "What if all of a sudden my asshole husband becomes Prince Charming someday?" But I do sit here and wonder, "What if there is an answer for us, medically, and it is possible after all for me to become pregnant and birth our baby?" It's not impossible, supposedly. The question is, how many times do I need to keep my shoes by the door before I come to the conclusion that perhaps the medical route is not the best way for us to build our family?
I have invested so much into the medical path. I have overturned a lot of stones, only to come up empty, in every sense of the word. I have to be ok with the fact that I may never get the answer and the fix I so desperately seek. It's possible that next time could be THE time that gets us pregnant. There is always hope that things will get better, that we will have an answer. And then that hope is dashed, over and OVER and OVER again. For seemingly no reason.
In a way, I feel like infertility gives us just enough hope to be the flowers and nice treatment after a whopper of a fight that has left us bruised and shattered inside. I'm not quite ready to get a divorce, to shut that door myself. I am pretty freaking close, though. It is so hard to admit this, not because I think it is a failing, but because I feel failed. Robbed, really. Why should this be so hard when it is supposed to be just the way things work out? We want a family, and we want it sooner than later. It is so, so, so hard to realize that this medical business may not be the way to do that when we've been so gung-ho about it and had so much reasonable hope that this would not be the way things turned out. I don't want to prolong my childless home out of a sliver of hope that we might find the answer. If the answer means a lot more poking and prodding and blood draws like Friday's, I'm not sure I have anything left. As Bryce said this morning over our eggs that had grown a bit cold from all the heavy discussion, infertility has sucked so much away. It's all we talk about. It's all we know how to do anymore. It has become imbalanced, and we are so much more than blood draws and treatment options and possible silver bullets that turn out to be just more disappointment.
Where does this leave us? I honestly don't know. I know I don't know how much more I can take, physically or emotionally. I did manage to get back to school and go to the last 15 minutes of 2nd period and the teach the whole rest of the day. People are very understanding and it wasn't a problem, and if I had needed to go home and spend the rest of the day in bed I think I could have made that work. But I didn't want to. 8th graders are a strange balm for a shattered soul. I wasn't myself on Friday, that's for sure. But I did it. I made it through the day. I was kind of a good actress. As I told the teacher I share a room with, totally stealing from Clueless, I am a Monet today. From far away I look just fine, but get too close and I'm just a blurry mess. I had someone tell me I was incredibly strong. I agree, I am a strong person. I have to be. But at this point, is that more a blessing or a curse? Is my determination to make this work keeping me stuck in one door and when the other door may bring us the joy and love we long to give and share? It's entirely possible.
The plan continues, in the meantime. Another second opinion consult on Wednesday. The orientation with the adoption agency on Monday. Bloodwork is in progress to see if we are dealing with a translocation on Bryce's end. I'm not sure what to hope for here. I'm not sure what to do next. I do know that there is a definite limit on what I can do moving forward in terms of IVF. I am getting awfully close to being able to let go, to fling the other door wide open and leave this dysfunctional but ever appealing hope of success, no matter how slivery it may be at this point, behind.
Wednesday, November 6, 2013
Consult #1: Questions, Possible Answers, Possibly More Questions Than Answers
Well, hello strangers!
It has been a rough couple of weeks and I am tired. I have been starting and saving and ultimately not posting incomplete posts for a little while here, because sometimes I just can't bring myself to write about where we are right now. There have been periods in my life where I didn't write in my journal, because it was too painful to see what was happening in writing (see about 3-4 years of my 5 year first marriage). I kind of dropped down into that mindset again because I just CANNOT keep writing that things aren't working. I have a new journal and I wrote in it with hope during our last FET cycle, and according to my journal it's still September and I'm still waiting. I am so tired of writing the words "It was negative" over and over and over again.
And here, in this internet world, I haven't really delved too much into where we are. It's too hard. It's a little personal feeling. And the truth is, I don't really have a clear cut answer.
Our plan consists of this:
1) Complete three 2nd opinion consults with other clinics, preferably before the end of November. Complete orientation with a local adoption agency. Gather information on all possible options.
2) Make a plan for what to do with our 6 2PN embryos sitting in the freezer.
3) Don't do anything with said 2PNs until February at the earliest, because we desperately need a Fertility-Free Holiday and we want December and January to belong to US. Not uncertainty and heartbreak and drugs.
4) After 2PNs are thawed and grown and transferred, either dance a hestitantly joyous dance and call it good, or realize that we are at a big fat fork in the road and make a difficult decision. Continue down this path that has been largely unsuccessful? Or blaze a new trail into the world of domestic infant adoption and learn a whole new language and way of being hopeful and expectant with a new kind of uncertainty.
Pretty good plan, eh?
Today we had our first consult, with CCRM in Denver. Over the phone, as I don't have a transporter handy. It was very, very interesting. I really wasn't sure what to expect. Or what to hope for. Or how I would feel with pretty much anything that would be said. Did I want them to come back and say "pregnancy is a long shot for you?" so that I can put this all to bed? Maybe. As hard as that would be, for the love of all that is holy, I would love for SOMEONE ELSE to make the decision that we've had enough and that hope is fleeting and this is just not going to happen for us. Because if there is a good chance that there is something missing that could be a gamechanger, I just don't think I can put it to bed without peering under that rock and clearing away what lies beneath. Did I want them to say "we've had a bunch of patients JUST LIKE YOU and they are all bouncing their bundles of joy on their laps RIGHT NOW?" Maybe. Of course that probably means more treatments and more punishing my already punished body and, yet again, no 100% guarantee of success, so possibly more flushing money out to the depths of Lake Ontario.
What did we get?
Interesting, interesting stuff. We have been questioning whether or not sperm could be an issue. We have been told it is likely not an issue, that chromosomal abnormalities in sperm are likely not our issue, and so we have concentrated on MY eggs and MY uterus. When really, in addition to my uterus (which has been photographed and poked and prodded and tested within an inch of it's little 8cm life), sperm is the only other constant. We did donor eggs and had similar results. In fact, we had a lot more fertilized eggs, but our ending number of blastocysts was not stellar. 4/15 that were allowed to culture and grow out, and only 3 of those resulted in good quality blasts. The rest either arrested or did what embryos do when they don't make it to Day 5. And then there's those 6 that were frozen on Day 1, those enigmas that may or may not amount to anything, really. So, uh, remind me again, why isn't sperm a factor? Oh, yeah, according to CCRM, that was TWO out of the THREE possibilities they threw out there. 1) Chromosomally abnormal sperm due to translocation, identified through karyotyping (which we haven't had done). And/or 2) Fragmented DNA in the packaging of the sperm, testable through a screening they do in office in Denver. INTERESTING. Both of these result in a) poor implantation rates and b) early miscarriage. Both things we struggle with, despite having stellar SuperDonor eggs at our disposal. Hmmm. And, if I may add, feeling very frustrated, things I have asked about and been pooh-poohed by our current medical team. Harrumph. Now, I realize that we are talking one out of 3 consults. But this clinic is apparently the best in the nation. So I am pretty sure that I can take what they say seriously. We will be testing for these issues. It doesn't mean that's what's going on, but OH MY GOD it would be so exciting if we had an actual answer. Of course, at a price. Losing Bryce's genetic component would be a big loss, but he has so much more to offer than sperm. Nurture over nature. I would pee myself if this was our silver bullet. What's this #3 possibility? That perhaps I don't produce enough of a protein in my lining that is the essential ingredient in an embryo implanting in the uterus. An issue identified through an endometrial biopsy (ow ow ow) and then treated with the super Lupron time release shot over two months. I have never heard of this, have you? The protein is called "integrin?" Apparently a relatively easy fix. If that's something going on.
Oh, and the recommendation for our little 6PNs was... thaw them all. Grow them out to 5 days. Do not transfer anything earlier than 5 days. Risk losing them all because chances are they won't do anything if they aren't blastocysts anyway. (This is not the opinion of our current team...they say grow to Day Three, Day Five is too much of a risk.) Oh, and karyotype first, because if we do have the translocation in the sperm, then chances are those embryos are no good. Even if we did get pregnant with them we would likely miscarry and if we didn't miscarry then we'd pass the translocation on. Do I want to do that? Do we want to give the gift of infertility to our future children? NO NO NO. So, now we have to figure out a) when to get the karyotyping done and b) how to say, "yes I'd like to grow my 2PNs out to Day Five fully realizing that they may all arrest and we have nothing to transfer." Gargh.
So there you have it. They would like us to fly out to CO for a day-long workup for both Donor Egg and my eggs. Because, oh, my eggs aren't totally off the table necessarily. If it's a sperm issue. So then we get to switch around our genetic mourning. I've done pretty well mourning my eggs. How to deal with the possibility of reintroducing them into the pot and mourning Bryce's sperm? WHY DO WE HAVE TO DEAL WITH THESE HARD QUESTIONS AT ALL? I am so frustrated. We are so frustrated.
And, if you haven't noticed, we are also looking into domestic infant adoption. For information. To see what this agency has to offer and if we have a better feeling from them than we did from a different agency, whose seminar we went to two years ago and left us feeling hopeless. However, just so you know, WE WILL NOT DO THESE THINGS SIMULTANEOUSLY. We are hunting and gathering right now. We are searching for information so that we can make an informed decision. Adoption is NOT a fertility treatment. We will not be filling out paperwork and putting ourselves into adoption so that, while we're "not thinking about it," we will get pregnant. It is unbelievable how many times I have heard that. I need to put medical treatment behind me before I can commit to adoption. I am very open to adoption, more so than I've ever been. We're tired of all this. We realize, WE WANT A BABY. We want a child in this house. We are tired of being just the two of us and two tiny furry beings. We want noise. We want chaos. We want another outlet for the incredible love we have to give. And we are so, so tired of the emptiness. But, we want to enter into adoption with a clear mind and heart. Actually, I should revise that. Bryce could go now. I am the one who needs to feel more resolved. I am the one who is finding it difficult to let go of this hope that has not exactly served us well. I want one more try. It's like crack. Expensive, body-punishing crack. (Oh wait, that sounds like actual crack, although I think that's cheaper than gonadotropins...) The possibility that there is a fix and we could have the experience of pregnancy and that whole piece of the human condition that has been so elusive to us is just so...addicting. How can I close the door when there's still hope and the possibility of an answer and a treatment that will make this dream come true? But, at the same time, how can I keep torturing us with this uncertainty while there is another way to become the parents we dream of being? Tough times. Tough questions. No good, solid answers.
So, once the 2PNs are gone, and we are either happily pregnant and hoping we stay that way or yet again in this lonely drifting boat, we have to decide. Further treatment, or move onward to adoption? If we choose further treatment, we have to put a number on it. We can't invest a lot of money into another try. That's the thing with the possibility of a sperm issue--donor sperm is WAY WAY cheaper than donor egg. Maybe we give that a shot. We have two more consults to go and the adoption orientation to absorb. We have more information to gather. We don't have to make a decision until later. We are off until February (well, one consult is in January because we didn't want to do anything in December and November was booked). Why, why, why must this all be so exhausting? I hope that we can survive this exploration process. I hope that we get more answers than further questions. I am so grateful for our togetherness and open hearts...I don't know how I'd survive all this if we didn't have such a strong relationship. Here's hoping there's a resolution of some kind looming on the horizon...
It has been a rough couple of weeks and I am tired. I have been starting and saving and ultimately not posting incomplete posts for a little while here, because sometimes I just can't bring myself to write about where we are right now. There have been periods in my life where I didn't write in my journal, because it was too painful to see what was happening in writing (see about 3-4 years of my 5 year first marriage). I kind of dropped down into that mindset again because I just CANNOT keep writing that things aren't working. I have a new journal and I wrote in it with hope during our last FET cycle, and according to my journal it's still September and I'm still waiting. I am so tired of writing the words "It was negative" over and over and over again.
And here, in this internet world, I haven't really delved too much into where we are. It's too hard. It's a little personal feeling. And the truth is, I don't really have a clear cut answer.
Our plan consists of this:
1) Complete three 2nd opinion consults with other clinics, preferably before the end of November. Complete orientation with a local adoption agency. Gather information on all possible options.
2) Make a plan for what to do with our 6 2PN embryos sitting in the freezer.
3) Don't do anything with said 2PNs until February at the earliest, because we desperately need a Fertility-Free Holiday and we want December and January to belong to US. Not uncertainty and heartbreak and drugs.
4) After 2PNs are thawed and grown and transferred, either dance a hestitantly joyous dance and call it good, or realize that we are at a big fat fork in the road and make a difficult decision. Continue down this path that has been largely unsuccessful? Or blaze a new trail into the world of domestic infant adoption and learn a whole new language and way of being hopeful and expectant with a new kind of uncertainty.
Pretty good plan, eh?
Today we had our first consult, with CCRM in Denver. Over the phone, as I don't have a transporter handy. It was very, very interesting. I really wasn't sure what to expect. Or what to hope for. Or how I would feel with pretty much anything that would be said. Did I want them to come back and say "pregnancy is a long shot for you?" so that I can put this all to bed? Maybe. As hard as that would be, for the love of all that is holy, I would love for SOMEONE ELSE to make the decision that we've had enough and that hope is fleeting and this is just not going to happen for us. Because if there is a good chance that there is something missing that could be a gamechanger, I just don't think I can put it to bed without peering under that rock and clearing away what lies beneath. Did I want them to say "we've had a bunch of patients JUST LIKE YOU and they are all bouncing their bundles of joy on their laps RIGHT NOW?" Maybe. Of course that probably means more treatments and more punishing my already punished body and, yet again, no 100% guarantee of success, so possibly more flushing money out to the depths of Lake Ontario.
What did we get?
Interesting, interesting stuff. We have been questioning whether or not sperm could be an issue. We have been told it is likely not an issue, that chromosomal abnormalities in sperm are likely not our issue, and so we have concentrated on MY eggs and MY uterus. When really, in addition to my uterus (which has been photographed and poked and prodded and tested within an inch of it's little 8cm life), sperm is the only other constant. We did donor eggs and had similar results. In fact, we had a lot more fertilized eggs, but our ending number of blastocysts was not stellar. 4/15 that were allowed to culture and grow out, and only 3 of those resulted in good quality blasts. The rest either arrested or did what embryos do when they don't make it to Day 5. And then there's those 6 that were frozen on Day 1, those enigmas that may or may not amount to anything, really. So, uh, remind me again, why isn't sperm a factor? Oh, yeah, according to CCRM, that was TWO out of the THREE possibilities they threw out there. 1) Chromosomally abnormal sperm due to translocation, identified through karyotyping (which we haven't had done). And/or 2) Fragmented DNA in the packaging of the sperm, testable through a screening they do in office in Denver. INTERESTING. Both of these result in a) poor implantation rates and b) early miscarriage. Both things we struggle with, despite having stellar SuperDonor eggs at our disposal. Hmmm. And, if I may add, feeling very frustrated, things I have asked about and been pooh-poohed by our current medical team. Harrumph. Now, I realize that we are talking one out of 3 consults. But this clinic is apparently the best in the nation. So I am pretty sure that I can take what they say seriously. We will be testing for these issues. It doesn't mean that's what's going on, but OH MY GOD it would be so exciting if we had an actual answer. Of course, at a price. Losing Bryce's genetic component would be a big loss, but he has so much more to offer than sperm. Nurture over nature. I would pee myself if this was our silver bullet. What's this #3 possibility? That perhaps I don't produce enough of a protein in my lining that is the essential ingredient in an embryo implanting in the uterus. An issue identified through an endometrial biopsy (ow ow ow) and then treated with the super Lupron time release shot over two months. I have never heard of this, have you? The protein is called "integrin?" Apparently a relatively easy fix. If that's something going on.
Oh, and the recommendation for our little 6PNs was... thaw them all. Grow them out to 5 days. Do not transfer anything earlier than 5 days. Risk losing them all because chances are they won't do anything if they aren't blastocysts anyway. (This is not the opinion of our current team...they say grow to Day Three, Day Five is too much of a risk.) Oh, and karyotype first, because if we do have the translocation in the sperm, then chances are those embryos are no good. Even if we did get pregnant with them we would likely miscarry and if we didn't miscarry then we'd pass the translocation on. Do I want to do that? Do we want to give the gift of infertility to our future children? NO NO NO. So, now we have to figure out a) when to get the karyotyping done and b) how to say, "yes I'd like to grow my 2PNs out to Day Five fully realizing that they may all arrest and we have nothing to transfer." Gargh.
So there you have it. They would like us to fly out to CO for a day-long workup for both Donor Egg and my eggs. Because, oh, my eggs aren't totally off the table necessarily. If it's a sperm issue. So then we get to switch around our genetic mourning. I've done pretty well mourning my eggs. How to deal with the possibility of reintroducing them into the pot and mourning Bryce's sperm? WHY DO WE HAVE TO DEAL WITH THESE HARD QUESTIONS AT ALL? I am so frustrated. We are so frustrated.
And, if you haven't noticed, we are also looking into domestic infant adoption. For information. To see what this agency has to offer and if we have a better feeling from them than we did from a different agency, whose seminar we went to two years ago and left us feeling hopeless. However, just so you know, WE WILL NOT DO THESE THINGS SIMULTANEOUSLY. We are hunting and gathering right now. We are searching for information so that we can make an informed decision. Adoption is NOT a fertility treatment. We will not be filling out paperwork and putting ourselves into adoption so that, while we're "not thinking about it," we will get pregnant. It is unbelievable how many times I have heard that. I need to put medical treatment behind me before I can commit to adoption. I am very open to adoption, more so than I've ever been. We're tired of all this. We realize, WE WANT A BABY. We want a child in this house. We are tired of being just the two of us and two tiny furry beings. We want noise. We want chaos. We want another outlet for the incredible love we have to give. And we are so, so tired of the emptiness. But, we want to enter into adoption with a clear mind and heart. Actually, I should revise that. Bryce could go now. I am the one who needs to feel more resolved. I am the one who is finding it difficult to let go of this hope that has not exactly served us well. I want one more try. It's like crack. Expensive, body-punishing crack. (Oh wait, that sounds like actual crack, although I think that's cheaper than gonadotropins...) The possibility that there is a fix and we could have the experience of pregnancy and that whole piece of the human condition that has been so elusive to us is just so...addicting. How can I close the door when there's still hope and the possibility of an answer and a treatment that will make this dream come true? But, at the same time, how can I keep torturing us with this uncertainty while there is another way to become the parents we dream of being? Tough times. Tough questions. No good, solid answers.
So, once the 2PNs are gone, and we are either happily pregnant and hoping we stay that way or yet again in this lonely drifting boat, we have to decide. Further treatment, or move onward to adoption? If we choose further treatment, we have to put a number on it. We can't invest a lot of money into another try. That's the thing with the possibility of a sperm issue--donor sperm is WAY WAY cheaper than donor egg. Maybe we give that a shot. We have two more consults to go and the adoption orientation to absorb. We have more information to gather. We don't have to make a decision until later. We are off until February (well, one consult is in January because we didn't want to do anything in December and November was booked). Why, why, why must this all be so exhausting? I hope that we can survive this exploration process. I hope that we get more answers than further questions. I am so grateful for our togetherness and open hearts...I don't know how I'd survive all this if we didn't have such a strong relationship. Here's hoping there's a resolution of some kind looming on the horizon...
Saturday, October 19, 2013
Medical History Meltdown
Why must fertility clinic forms be so aggravating?
We have decided to get a second opinion via phone consult with CCRM in Colorado. Supposedly they are the best clinic in the nation, and they have an entire section of their website dedicated to out-of-state patients. We have those 6 2PN embryos in the freezer and don't want to do anything with them until we get second opinions. So, we have a phone consult with CCRM scheduled for early November.
HOWEVER, before that consult, we have to fill out a dizzying array of forms detailing every last bit of information about our medical history, infertility history, puberty history, you name it. I had to call my mom to find out when exactly I got hair in funny places. Because no normal human being remembers when that happens. Boob development, sure. First period I had the month right but was confused about the year, because I had a lovely "January cake" baked by my mom when that momentous occasion arrived. A white cake with vanilla frosting (pushing virginity much?), although red velvet would have been more hilarious. Kind of like the armadillo groom's cake in Steel Magnolias, only more disturbing.
Once I got all that puberty stuff out of the way, it then became apparent that I would need to document every single cycle we've ever done and the outcome. I'm pretty sure this is what sending my medical records over is for, so why I have to also document it all is beyond me. Especially since I had to break out all my folders and notebooks from my obsessive documenting (thank goodness I had that), and then on page 12/13, when I'd hit the radio buttons for NOT PREGNANT, ECTOPIC PREGNANCY, and MISCARRIAGE more times than I cared to, each little mouse click cutting deeper into my heart, feeling the pain of each failure over and over again, IT KICKED ME OUT. I had a massive freakout. Screaming, crying, medical records and notebooks flying. I had to log in again and it had said it wouldn't save, but I had done EVERYTHING the website told me to do. For some reason, despite spending an hour and a half inputting information, I had gotten a pop-up warning me that my session was about to end, so I dutifully clicked on "Extend My Session." It didn't matter. I got kicked out anyway. Luckily, it brought me right back to page 12. UNluckily, I had to fill in every last cycle again. All the failures. All the losses. Again again again. I got almost to the bottom of the page when my wrist hit my mouse's scroll button. IT KICKED ME OUT AGAIN. I pretty much just turned into a puddle at this point. Crying heaving sobs that left flecks of salt water on my glasses. WHY, CCRM? WHY is your website so FRAGILE? Don't you understand that your would-be patients need a robust website that can handle anything so that we don't have to fill in all this pain AGAIN and AGAIN? There was a section for emotional wellbeing, where you were supposed to fill out the stress level from infertility and related pressures on a 1-10 scale, 10 being the worst. The first time through I said 7 (perhaps a little optimistically). The second time through I wanted to write 12, ASSHOLES!!! TWELVE! Thanks to your little website and the detritus of my personal tragedy littering the office floor! I was a seven before but now I am near stroke level! Instead, I wrote 8. Eight because I am not suicidal, I am able to function at my job on a daily basis, I am not a catatonic zombie on the couch. I'd kind of like to be, but I'm not. So I think my ability to not be a childless zombie on the couch earns me an 8 instead of the 10 Bryce was pushing for. I filled everything out again. I had some dates memorized at this point. It got tricky at the end, because I just got to the point where I could not document anymore. I just can't do it. It makes no difference. Although, had I documented the last two cycles, it would have been a little easier to fill out this godforsaken form.
The form is in. The family history is in. The one where I got to chronicle that yes, other women in my family have had trouble conceiving, but that they all have at least one child. NOT ME, though. Still slogging.
Moments like this really make me realize that when these lovely 6 2PNs are gone, whether there is (hopefully) a pregnancy that results in a baby or there is nothing yet again, I AM DONE with this. As of this moment, I don't think that I have it in me to keep going down the medical treatment path after this last frozen. We are seriously needing to reevaluate ourselves and what we truly want. Because I am not willing to sacrifice my well being in every sense of the word for the dwindling hope that I might get pregnant, when pregnancy is such a short part of parenthood overall. I want a baby. I am grappling with the fact that how this baby comes to me is really quite the mystery, but we need to start looking down other roads. So we have the CCRM consult, I am scheduling a consult with another local clinic, and I have requested information on domestic infant adoption. Which will, of course, entail filling out many, many forms of every type of history there is.
For now, though, I am glad that the CCRM paperwork is, for the most part, done. Now I can go and drink a well-deserved margarita. And apologize to Bryce for the infertile banshee I became while buried in the documentation of all my failures. I so wish that all of this could be just a little bit easier.
We have decided to get a second opinion via phone consult with CCRM in Colorado. Supposedly they are the best clinic in the nation, and they have an entire section of their website dedicated to out-of-state patients. We have those 6 2PN embryos in the freezer and don't want to do anything with them until we get second opinions. So, we have a phone consult with CCRM scheduled for early November.
HOWEVER, before that consult, we have to fill out a dizzying array of forms detailing every last bit of information about our medical history, infertility history, puberty history, you name it. I had to call my mom to find out when exactly I got hair in funny places. Because no normal human being remembers when that happens. Boob development, sure. First period I had the month right but was confused about the year, because I had a lovely "January cake" baked by my mom when that momentous occasion arrived. A white cake with vanilla frosting (pushing virginity much?), although red velvet would have been more hilarious. Kind of like the armadillo groom's cake in Steel Magnolias, only more disturbing.
Once I got all that puberty stuff out of the way, it then became apparent that I would need to document every single cycle we've ever done and the outcome. I'm pretty sure this is what sending my medical records over is for, so why I have to also document it all is beyond me. Especially since I had to break out all my folders and notebooks from my obsessive documenting (thank goodness I had that), and then on page 12/13, when I'd hit the radio buttons for NOT PREGNANT, ECTOPIC PREGNANCY, and MISCARRIAGE more times than I cared to, each little mouse click cutting deeper into my heart, feeling the pain of each failure over and over again, IT KICKED ME OUT. I had a massive freakout. Screaming, crying, medical records and notebooks flying. I had to log in again and it had said it wouldn't save, but I had done EVERYTHING the website told me to do. For some reason, despite spending an hour and a half inputting information, I had gotten a pop-up warning me that my session was about to end, so I dutifully clicked on "Extend My Session." It didn't matter. I got kicked out anyway. Luckily, it brought me right back to page 12. UNluckily, I had to fill in every last cycle again. All the failures. All the losses. Again again again. I got almost to the bottom of the page when my wrist hit my mouse's scroll button. IT KICKED ME OUT AGAIN. I pretty much just turned into a puddle at this point. Crying heaving sobs that left flecks of salt water on my glasses. WHY, CCRM? WHY is your website so FRAGILE? Don't you understand that your would-be patients need a robust website that can handle anything so that we don't have to fill in all this pain AGAIN and AGAIN? There was a section for emotional wellbeing, where you were supposed to fill out the stress level from infertility and related pressures on a 1-10 scale, 10 being the worst. The first time through I said 7 (perhaps a little optimistically). The second time through I wanted to write 12, ASSHOLES!!! TWELVE! Thanks to your little website and the detritus of my personal tragedy littering the office floor! I was a seven before but now I am near stroke level! Instead, I wrote 8. Eight because I am not suicidal, I am able to function at my job on a daily basis, I am not a catatonic zombie on the couch. I'd kind of like to be, but I'm not. So I think my ability to not be a childless zombie on the couch earns me an 8 instead of the 10 Bryce was pushing for. I filled everything out again. I had some dates memorized at this point. It got tricky at the end, because I just got to the point where I could not document anymore. I just can't do it. It makes no difference. Although, had I documented the last two cycles, it would have been a little easier to fill out this godforsaken form.
The form is in. The family history is in. The one where I got to chronicle that yes, other women in my family have had trouble conceiving, but that they all have at least one child. NOT ME, though. Still slogging.
Moments like this really make me realize that when these lovely 6 2PNs are gone, whether there is (hopefully) a pregnancy that results in a baby or there is nothing yet again, I AM DONE with this. As of this moment, I don't think that I have it in me to keep going down the medical treatment path after this last frozen. We are seriously needing to reevaluate ourselves and what we truly want. Because I am not willing to sacrifice my well being in every sense of the word for the dwindling hope that I might get pregnant, when pregnancy is such a short part of parenthood overall. I want a baby. I am grappling with the fact that how this baby comes to me is really quite the mystery, but we need to start looking down other roads. So we have the CCRM consult, I am scheduling a consult with another local clinic, and I have requested information on domestic infant adoption. Which will, of course, entail filling out many, many forms of every type of history there is.
For now, though, I am glad that the CCRM paperwork is, for the most part, done. Now I can go and drink a well-deserved margarita. And apologize to Bryce for the infertile banshee I became while buried in the documentation of all my failures. I so wish that all of this could be just a little bit easier.
Saturday, October 12, 2013
Bad Timing for Book Club
I joined a book club this past year. I have unsuccessfully joined book clubs at least three times, but for this particular book club, I have returned and participated in multiple meetings. Which is a record for me. And it's ironic, because the only link I have to the people in this book club is my next door neighbor, who I don't actually know all that well, and the people in it are all people who have met through working at Xerox. Some still do, many don't anymore, but that is the common thread. On a surface level, I have very little in common with the group, but it works. Most members are older than me by at least 10-15 years, and so most children are either in grade school or even college, and there is very little "New Parent Talk" to be had. Which is lovely.
The other reason why I love this book club is that THEY ACTUALLY READ AND MAKE A POINT TO DISCUSS THE BOOK. At length. They bring questions. They go around the room. The point of the club is not first food and wine and then a little book talk and call it good, it's the book discussion with food and wine as a close second, but definitely a second. It's lovely. I can be as book nerdy as I want and it is welcomed. Plus it makes me read books I wouldn't otherwise pick out myself.
Except that this past choice came at a really bad time.
The last book club was in July, and it was decided we needed to read some nonfiction. Choices were thrown out, and while I really wanted to read the "Who Is Murdering Long Island Call Girls and Why Do So Few People Care" book choice, the consensus landed on In the Garden of Beasts, an Erik Larson book about an American family that moved to Berlin as the ambassador to the US at the time that Hitler was rising to power and people were still turning a blind eye to his atrocities but it was getting harder and harder to ignore what was happening to Jews in particular but also other groups. It is a good book, although an incredibly dense book, not that I finished it. The book club was October 8th, so I could spend both the end of summer and the beginning of the school year reading about Hitler.
Except, when you are trying desperately to conceive a baby through incredibly taxing means, and you are starting a new school year, but mostly you are TRYING TO BREW A BABY, you don't really feel like reading about Hitler's rise to power in 1930s Berlin.
And then, when you fail that cycle, and embryos #19 and 20 flee your supposedly welcoming womb, you want to read about Hitler even less. And you really don't want to discuss it.
Add to that a seriously ailing grandmother and the stresses of going to visit and not being entirely sure which sunken and possibly unresponsive grandma you will be seeing, and the lure of both reading and discussing Hitler has really gone by.
Oh, and October 8th was my consult, where we sat in a new conference room we hadn't ever been in before (new to us, I wondered if it was the "Come To Jesus Meeting" Room), and basically came to the conclusion that these precious 6 2PN embryos we have hanging out in the freezer are likely our last chance before we have to seriously weigh our options on family building and decide where to put our resources where we can, you know, ACTUALLY HAVE A FREAKING FAMILY already, and I REALLY didn't want to go to book club.
Especially because the one member of book club who is my age or possibly even a bit younger was due in October or November, I can't remember which, but she was either going to be a) ginormously hugely pregnant or b) toting a newborn or talking incessantly about pumping and sleeping and the adjustment for her 2 year old son or c) not there because she is either due any second or has just birthed her baby and everyone else would be talking beatifically about how wonderful new motherhood is. I could not handle any of it. Especially since two book clubs ago the pregnancy announcement was a "funny story, I wasn't feeling well but I thought nothing of it and then I had a glass or two of wine and felt horrible so I thought 'hey, maybe I should pee on a stick or something' and it was POSITIVE! I was like 11 weeks pregnant! How weird!" OH HOLY JEEZUM, yes. WEIRD. Because THAT WILL NEVER EVER HAPPEN TO ME. I will never "accidentally" discover that I am nearly through my first trimester. I have no mystery. I will (likely) never be surprised with a sneak attack pregnancy. So, while this woman is incredibly sweet and kind and all of that, I just could not be around a birth story from a whoopsie baby right now.
I have never shared with these people that I am hideously infertile. But when I canceled via email to this time's host, I just said this week had been awful and I couldn't make it. And when she responded "I hope everything is ok," I just couldn't not send a message. It may have read, "Yeah, what with the start of the school year, my grandmother going into a steady decline, and failing my 8th IVF, I just can't bring myself to be social and chat about Hitler. :-)" Too much? It wasn't meant to be mean, just informative. Maybe a bit pithy. I didn't get a response.
So, hopefully I haven't killed my participation in this book club over my honesty. But I can't smile through the conversations anymore. I can't handle anything ANYMORE. Yesterday I was in data-analysis meetings for school to see how I can maybe help my students with disabilities be proficient on these state tests, and they let us out early. I was sitting next to a friend who was excited to go home and clean her house without children in it. I said, "that doesn't sound like fun" but then realized it is much like when my best friend has an unexpected hour or two by herself in her house without her three children, and that even vacuuming in peace is exciting when people are always needing you and touching you and there is no downtime ever. A chaos that I would pretty much give a limb for at this point, but I just don't have and at first cannot understand. Another teacher came over and basically said that she couldn't wait to get home for alone time even if it meant cleaning bathrooms, and my friend said, "Yeah, Jess didn't get why that's so exciting." It was a joke. It was harmless. And this other teacher, who knows NOTHING about my situation, said, "Oh, you really just don't get it, you don't understand then." And I just kept highlighting my math standard strands that my student did not understand on the state math test and said loudly, "NO, I really DON'T. I have NO IDEA." Only I got that I was being very snarky. Well, maybe my friend knew. I WOULD GIVE ANYTHING to know what it feels like to want to go home and clean in peace because my life is full of joyful chaos. Even when kids are screaming and you're covered in vomit, that chaos is joyful because it's full of children. I have a quiet, empty house. Bryce and I have a very cozy little house that is welcoming but SO SO QUIET. We are tired of it. We want the chaos. I want to complain that I just want 15 minutes with no one touching me or yelling "Mommy? Mommy? Mommy? MOMMY?" I am terrified that I may never get to long for that peace and quiet, that I will be forever on the outside looking in on that beautiful, frustrating, chaotic world of parenthood.
So it is probably understandable that I could not handle a book club where it is possible I could have lost it and, with a group of women (and a handful of men) who I don't know all that well enough, it could have been incredibly awkward. Or not. I don't know. Right now is about doing what I need to do to not fall spectacularly apart in public, because I do FABULOUSLY well falling apart in private. All the time. More on that later, aren't you so glad you have that to look forward to? Life goes on. Plans go on. I put on my semi-happy mask of a face and pretend to be ok, even though I am one hundred percent NOT ok. But at least I'm ok enough to know that my reading material at the moment cannot include a detailed historical account of Hitler's rise to power, and I can't participate even at the periphery of conversations about the joys and frustrations of motherhood.
The other reason why I love this book club is that THEY ACTUALLY READ AND MAKE A POINT TO DISCUSS THE BOOK. At length. They bring questions. They go around the room. The point of the club is not first food and wine and then a little book talk and call it good, it's the book discussion with food and wine as a close second, but definitely a second. It's lovely. I can be as book nerdy as I want and it is welcomed. Plus it makes me read books I wouldn't otherwise pick out myself.
Except that this past choice came at a really bad time.
The last book club was in July, and it was decided we needed to read some nonfiction. Choices were thrown out, and while I really wanted to read the "Who Is Murdering Long Island Call Girls and Why Do So Few People Care" book choice, the consensus landed on In the Garden of Beasts, an Erik Larson book about an American family that moved to Berlin as the ambassador to the US at the time that Hitler was rising to power and people were still turning a blind eye to his atrocities but it was getting harder and harder to ignore what was happening to Jews in particular but also other groups. It is a good book, although an incredibly dense book, not that I finished it. The book club was October 8th, so I could spend both the end of summer and the beginning of the school year reading about Hitler.
Except, when you are trying desperately to conceive a baby through incredibly taxing means, and you are starting a new school year, but mostly you are TRYING TO BREW A BABY, you don't really feel like reading about Hitler's rise to power in 1930s Berlin.
And then, when you fail that cycle, and embryos #19 and 20 flee your supposedly welcoming womb, you want to read about Hitler even less. And you really don't want to discuss it.
Add to that a seriously ailing grandmother and the stresses of going to visit and not being entirely sure which sunken and possibly unresponsive grandma you will be seeing, and the lure of both reading and discussing Hitler has really gone by.
Oh, and October 8th was my consult, where we sat in a new conference room we hadn't ever been in before (new to us, I wondered if it was the "Come To Jesus Meeting" Room), and basically came to the conclusion that these precious 6 2PN embryos we have hanging out in the freezer are likely our last chance before we have to seriously weigh our options on family building and decide where to put our resources where we can, you know, ACTUALLY HAVE A FREAKING FAMILY already, and I REALLY didn't want to go to book club.
Especially because the one member of book club who is my age or possibly even a bit younger was due in October or November, I can't remember which, but she was either going to be a) ginormously hugely pregnant or b) toting a newborn or talking incessantly about pumping and sleeping and the adjustment for her 2 year old son or c) not there because she is either due any second or has just birthed her baby and everyone else would be talking beatifically about how wonderful new motherhood is. I could not handle any of it. Especially since two book clubs ago the pregnancy announcement was a "funny story, I wasn't feeling well but I thought nothing of it and then I had a glass or two of wine and felt horrible so I thought 'hey, maybe I should pee on a stick or something' and it was POSITIVE! I was like 11 weeks pregnant! How weird!" OH HOLY JEEZUM, yes. WEIRD. Because THAT WILL NEVER EVER HAPPEN TO ME. I will never "accidentally" discover that I am nearly through my first trimester. I have no mystery. I will (likely) never be surprised with a sneak attack pregnancy. So, while this woman is incredibly sweet and kind and all of that, I just could not be around a birth story from a whoopsie baby right now.
I have never shared with these people that I am hideously infertile. But when I canceled via email to this time's host, I just said this week had been awful and I couldn't make it. And when she responded "I hope everything is ok," I just couldn't not send a message. It may have read, "Yeah, what with the start of the school year, my grandmother going into a steady decline, and failing my 8th IVF, I just can't bring myself to be social and chat about Hitler. :-)" Too much? It wasn't meant to be mean, just informative. Maybe a bit pithy. I didn't get a response.
So, hopefully I haven't killed my participation in this book club over my honesty. But I can't smile through the conversations anymore. I can't handle anything ANYMORE. Yesterday I was in data-analysis meetings for school to see how I can maybe help my students with disabilities be proficient on these state tests, and they let us out early. I was sitting next to a friend who was excited to go home and clean her house without children in it. I said, "that doesn't sound like fun" but then realized it is much like when my best friend has an unexpected hour or two by herself in her house without her three children, and that even vacuuming in peace is exciting when people are always needing you and touching you and there is no downtime ever. A chaos that I would pretty much give a limb for at this point, but I just don't have and at first cannot understand. Another teacher came over and basically said that she couldn't wait to get home for alone time even if it meant cleaning bathrooms, and my friend said, "Yeah, Jess didn't get why that's so exciting." It was a joke. It was harmless. And this other teacher, who knows NOTHING about my situation, said, "Oh, you really just don't get it, you don't understand then." And I just kept highlighting my math standard strands that my student did not understand on the state math test and said loudly, "NO, I really DON'T. I have NO IDEA." Only I got that I was being very snarky. Well, maybe my friend knew. I WOULD GIVE ANYTHING to know what it feels like to want to go home and clean in peace because my life is full of joyful chaos. Even when kids are screaming and you're covered in vomit, that chaos is joyful because it's full of children. I have a quiet, empty house. Bryce and I have a very cozy little house that is welcoming but SO SO QUIET. We are tired of it. We want the chaos. I want to complain that I just want 15 minutes with no one touching me or yelling "Mommy? Mommy? Mommy? MOMMY?" I am terrified that I may never get to long for that peace and quiet, that I will be forever on the outside looking in on that beautiful, frustrating, chaotic world of parenthood.
So it is probably understandable that I could not handle a book club where it is possible I could have lost it and, with a group of women (and a handful of men) who I don't know all that well enough, it could have been incredibly awkward. Or not. I don't know. Right now is about doing what I need to do to not fall spectacularly apart in public, because I do FABULOUSLY well falling apart in private. All the time. More on that later, aren't you so glad you have that to look forward to? Life goes on. Plans go on. I put on my semi-happy mask of a face and pretend to be ok, even though I am one hundred percent NOT ok. But at least I'm ok enough to know that my reading material at the moment cannot include a detailed historical account of Hitler's rise to power, and I can't participate even at the periphery of conversations about the joys and frustrations of motherhood.
Thursday, October 3, 2013
This Week Officially Officially Sucks
A negative test after my 8th IVF, second donor attempt (first donor FET) where my uterus was sparkly and plush and everything looked so good was bad enough. That's a Monday that just sets the WRONG TONE for the week. Luckily I had a half day sick day to accommodate the test uncertainty and possible devastating reaction.Good thing, too. But then all the crying exacerbated a cold I'd had that moved into my chest and I sounded like maybe bronchitis and so took another half day in the morning to go to the doctor.
Funny story. A year ago I switched my asthma medicine from a less pregnancy-friendly but more effective purple diskus to a slightly-less-effective but more pregnancy-friendly orange diskus. Because I was so sure I'd be pregnant soon. Twice over. And now my cold exacerbated my asthma to the point where my lung capacity on Tuesday was 64%. Which is, um, NOT GOOD. So I ended up on a steroid inhaler 2x a day for the next month and... MEDROL. Yup, the same Medrol that did not help me un-reject a beautiful hatching blast is now marginally helping my horribly inflamed lungs. I am on one of those dwindling dose packs and am thrilled to see that you don't have to be on 64mg to experience feelings of overwhelmedness and horrible insomnia. 24 and 20mg does that as well. AWESOME. Oh Medrol, I did not miss you. But I am feeling a bit better and hopefully within a week I won't sound like I have consumption minus the wasting away. Because thanks to all that PIO, I am at the heaviest weight I have ever been. And I don't get to go maternity clothes shopping. So I have to do something about this once my legs aren't freaking numb and needle-y so that I don't just cry every time I try to get dressed in the morning or catch my reflection in a car door. (Which, by the way, is like a funhouse mirror. NEVER look at your reflection in the side of a car. It is HORRIFIC.)
AND THEN, my grandmother, who had fallen and fractured her femur last week and got transferred from the hospital to the rehab unit of her assisted living facility organization, took a sudden turn for the worse yesterday. We had seen her on Saturday for an early 95th birthday party because my parents were headed to England to visit family for a bit over a week. The timing wasn't great but Grandma looked pretty well and seemed in good spirits, like her usual self in some pain but not anything horribly concerning. There was a schedule my mom set up with various family members to be sure there was someone with her in and out each day, and everything seemed just fine. Not great, but fine. Grandma enjoyed her lemon cake and the company of my sister and her husband and youngest stepson, my mom and my stepfather, and me (and eventually Bryce who unfortunately had to work until the last 15 minutes because things at his job are icky at the moment). My mom asked me to bring my violin, and given that my test was two days away and I'd been having the numbness and my thighs were so sore I was limping and school had been busy and I hadn't practiced in forever, I was hesitant. But I brought it anyway and it was actually really nice. We played a bunch of hymns with my mom on the hammered dulcimer and my sister on a travel guitar and then my sister sang a song she wrote herself. It was a regular Von Trapp family moment, but Grandma enjoyed it and that was important. Because when I came back to visit on Wednesday, I almost could not recognize her. She had requested more pain medication because she was hurting a lot, but she had crossed over into incoherent. She wasn't fully aware of who was in the room. She was hallucinating. She was having conversations with people who had been dead for years and even her beloved dog, Snickers, made a return from the other side to keep her company in her hallucinatory state. She looked sunken. She looked frailer than frail. Her breathing was labored. I left in hysterical sobs and my uncle brushed tears from his face throughout the time I was there. We thought it was the beginning of the end. It was possibly related to the massive doses of oxycodone she was on, but it seemed like just so much decline in such a short span of time. So, I had to go and call my mom in England to just give her the information about how her mother looked so that I didn't feel like I missed an opportunity to let her make her decision of whether or not to come home early in case my grandmother didn't make it. That was so awesome. I can't say how many times I said it could be a medication issue but that the way she looked and sounded and acted I was worried she wouldn't make it a week, but again she could pull through. My entire family is coming into town this weekend. Today she was better. Which is great, and no one ever regrets more time with a 95 year old powerhouse of a matriarch.
But, yesterday was a low low low point. Because it was so devastating to see her so weak and mentally out of it. Like at times not even in this decade. And part of my devastation was entirely selfish. Part of my devastation was compounded by walking in to the room, realizing my uncle was in the room and so that tiny writhing woman really was my grandmother, and seeing an iPad on the counter with a picture of my cousin's newborn on it. I am super excited for this baby because she had struggles of her own and she is a hard-won baby that took five years to get here. But to know in that moment that I was supposed to tell my grandmother my good news and to feel that I may never ever get to tell her that I am pregnant was an overwhelmingly gaping hole of a loss. I could not believe it. I mourned it. And even now I mourn it, because I don't know how long my grandmother will be with us. And I don't know if this will ever come to pass. I want to believe it. I am doing everything I can to make it happen and it just won't. She has intimated multiple times in a very roundabout way that adoption would be a great option for us. And believe me, I am considering it more and more BUT I AM NOT THERE YET and it is not something that I can rush or go into simultaneously. I know myself well enough to know that I cannot pursue both options fully at once. And for the love of all that is holy, we are doing everything we can to make the right decisions for ourselves and it is not an easy thing to do. It doesn't come without forethought and research. It may not always be fully understood, but we are not ready to move on to something else. We still have six opportunities (well, probably less than that once they are grown out to three days) still waiting, we just have to decide how to best do that before we are at the true crossroads. And I don't know how long this will take. And the thought of never ever getting to share joyful news with my grandmother that I finally made it and I will be a mother is heartbreaking. Especially yesterday when it seemed to both me and my uncle that that moment of finality was imminent.
And, in a moment that was both hilarious and heartbreaking, I peed on a stick yesterday. I actually went out and bought a two-pack (I could not resist) and peed on a stick even though my beta on MONDAY was undeniably 100% ZERO. Because my body was still tricking me with the PIO side effects and I wasn't convinced. In part because it was so hard to believe that THIS MUCH CRAP could fall from the sky at once. Maybe it was all a mistake. Maybe I was really pregnant and it wasn't too late to save it with an evening shot of PIO. But it was no miracle. Everything could be that sucky. Bryce was worried that I would be more upset with the negative pee stick. It just made me feel like, phew, now I can have a glass of chardonnay and not worry that I am killing my miracle baby. Because somehow in all of this I am still a Pollyanna who believes that miracles like that are possible despite overwhelming evidence to the contrary. On the other hand of things, now I have a spare pee stick haunting my cabinet. Maybe this is a magical pee stick. Maybe I am meant to have this lone pee stick for a future cycle that will actually result in a double line that stays. Or maybe I just had a moment of psychotic weakness where I thought that there is some limit to the series of unfortunate events that one person can trudge through in a short period of time and so this must all be a big mistake. Oh well.
So, this week has sucked. It's an understatement. And I am really really jealous of celebrities right now who can check themselves into rehab facilities under the "mental exhaustion" category. Because I am MENTALLY FREAKING EXHAUSTED. I wish some magic lottery ticket would make our next attempt AND a weeklong stay at some tropical spa where I could lounge with cucumber slices on my eyes and a fruity drink in my hand and forget that I am grieving in every possible way...possible. But this is real life and it is hard right now. And unfair. And I am sorry that I don't have a more positive spin! But I will end with a lovely picture of me with my grandmother, on Saturday, when she was doing well. Happy birthday, Grandma. I'm glad today was a better day.
Funny story. A year ago I switched my asthma medicine from a less pregnancy-friendly but more effective purple diskus to a slightly-less-effective but more pregnancy-friendly orange diskus. Because I was so sure I'd be pregnant soon. Twice over. And now my cold exacerbated my asthma to the point where my lung capacity on Tuesday was 64%. Which is, um, NOT GOOD. So I ended up on a steroid inhaler 2x a day for the next month and... MEDROL. Yup, the same Medrol that did not help me un-reject a beautiful hatching blast is now marginally helping my horribly inflamed lungs. I am on one of those dwindling dose packs and am thrilled to see that you don't have to be on 64mg to experience feelings of overwhelmedness and horrible insomnia. 24 and 20mg does that as well. AWESOME. Oh Medrol, I did not miss you. But I am feeling a bit better and hopefully within a week I won't sound like I have consumption minus the wasting away. Because thanks to all that PIO, I am at the heaviest weight I have ever been. And I don't get to go maternity clothes shopping. So I have to do something about this once my legs aren't freaking numb and needle-y so that I don't just cry every time I try to get dressed in the morning or catch my reflection in a car door. (Which, by the way, is like a funhouse mirror. NEVER look at your reflection in the side of a car. It is HORRIFIC.)
AND THEN, my grandmother, who had fallen and fractured her femur last week and got transferred from the hospital to the rehab unit of her assisted living facility organization, took a sudden turn for the worse yesterday. We had seen her on Saturday for an early 95th birthday party because my parents were headed to England to visit family for a bit over a week. The timing wasn't great but Grandma looked pretty well and seemed in good spirits, like her usual self in some pain but not anything horribly concerning. There was a schedule my mom set up with various family members to be sure there was someone with her in and out each day, and everything seemed just fine. Not great, but fine. Grandma enjoyed her lemon cake and the company of my sister and her husband and youngest stepson, my mom and my stepfather, and me (and eventually Bryce who unfortunately had to work until the last 15 minutes because things at his job are icky at the moment). My mom asked me to bring my violin, and given that my test was two days away and I'd been having the numbness and my thighs were so sore I was limping and school had been busy and I hadn't practiced in forever, I was hesitant. But I brought it anyway and it was actually really nice. We played a bunch of hymns with my mom on the hammered dulcimer and my sister on a travel guitar and then my sister sang a song she wrote herself. It was a regular Von Trapp family moment, but Grandma enjoyed it and that was important. Because when I came back to visit on Wednesday, I almost could not recognize her. She had requested more pain medication because she was hurting a lot, but she had crossed over into incoherent. She wasn't fully aware of who was in the room. She was hallucinating. She was having conversations with people who had been dead for years and even her beloved dog, Snickers, made a return from the other side to keep her company in her hallucinatory state. She looked sunken. She looked frailer than frail. Her breathing was labored. I left in hysterical sobs and my uncle brushed tears from his face throughout the time I was there. We thought it was the beginning of the end. It was possibly related to the massive doses of oxycodone she was on, but it seemed like just so much decline in such a short span of time. So, I had to go and call my mom in England to just give her the information about how her mother looked so that I didn't feel like I missed an opportunity to let her make her decision of whether or not to come home early in case my grandmother didn't make it. That was so awesome. I can't say how many times I said it could be a medication issue but that the way she looked and sounded and acted I was worried she wouldn't make it a week, but again she could pull through. My entire family is coming into town this weekend. Today she was better. Which is great, and no one ever regrets more time with a 95 year old powerhouse of a matriarch.
But, yesterday was a low low low point. Because it was so devastating to see her so weak and mentally out of it. Like at times not even in this decade. And part of my devastation was entirely selfish. Part of my devastation was compounded by walking in to the room, realizing my uncle was in the room and so that tiny writhing woman really was my grandmother, and seeing an iPad on the counter with a picture of my cousin's newborn on it. I am super excited for this baby because she had struggles of her own and she is a hard-won baby that took five years to get here. But to know in that moment that I was supposed to tell my grandmother my good news and to feel that I may never ever get to tell her that I am pregnant was an overwhelmingly gaping hole of a loss. I could not believe it. I mourned it. And even now I mourn it, because I don't know how long my grandmother will be with us. And I don't know if this will ever come to pass. I want to believe it. I am doing everything I can to make it happen and it just won't. She has intimated multiple times in a very roundabout way that adoption would be a great option for us. And believe me, I am considering it more and more BUT I AM NOT THERE YET and it is not something that I can rush or go into simultaneously. I know myself well enough to know that I cannot pursue both options fully at once. And for the love of all that is holy, we are doing everything we can to make the right decisions for ourselves and it is not an easy thing to do. It doesn't come without forethought and research. It may not always be fully understood, but we are not ready to move on to something else. We still have six opportunities (well, probably less than that once they are grown out to three days) still waiting, we just have to decide how to best do that before we are at the true crossroads. And I don't know how long this will take. And the thought of never ever getting to share joyful news with my grandmother that I finally made it and I will be a mother is heartbreaking. Especially yesterday when it seemed to both me and my uncle that that moment of finality was imminent.
And, in a moment that was both hilarious and heartbreaking, I peed on a stick yesterday. I actually went out and bought a two-pack (I could not resist) and peed on a stick even though my beta on MONDAY was undeniably 100% ZERO. Because my body was still tricking me with the PIO side effects and I wasn't convinced. In part because it was so hard to believe that THIS MUCH CRAP could fall from the sky at once. Maybe it was all a mistake. Maybe I was really pregnant and it wasn't too late to save it with an evening shot of PIO. But it was no miracle. Everything could be that sucky. Bryce was worried that I would be more upset with the negative pee stick. It just made me feel like, phew, now I can have a glass of chardonnay and not worry that I am killing my miracle baby. Because somehow in all of this I am still a Pollyanna who believes that miracles like that are possible despite overwhelming evidence to the contrary. On the other hand of things, now I have a spare pee stick haunting my cabinet. Maybe this is a magical pee stick. Maybe I am meant to have this lone pee stick for a future cycle that will actually result in a double line that stays. Or maybe I just had a moment of psychotic weakness where I thought that there is some limit to the series of unfortunate events that one person can trudge through in a short period of time and so this must all be a big mistake. Oh well.
So, this week has sucked. It's an understatement. And I am really really jealous of celebrities right now who can check themselves into rehab facilities under the "mental exhaustion" category. Because I am MENTALLY FREAKING EXHAUSTED. I wish some magic lottery ticket would make our next attempt AND a weeklong stay at some tropical spa where I could lounge with cucumber slices on my eyes and a fruity drink in my hand and forget that I am grieving in every possible way...possible. But this is real life and it is hard right now. And unfair. And I am sorry that I don't have a more positive spin! But I will end with a lovely picture of me with my grandmother, on Saturday, when she was doing well. Happy birthday, Grandma. I'm glad today was a better day.
Monday, September 30, 2013
What Else Can I Do?
Well, I wish I had good news on this fine Beta Day. The weather was gorgeous, I had a half day sick day so I could receive the news in private and react without students nearby, and I was feeling really positive.
Too bad my uterus wasn't full of positive. It's empty. Negative. Nothing doing.
A beautiful hatching blast and it's schmutzy companion did not care to stay.
This makes 20, TWENTY embryos that have come and gone.
HOW AM I SUPPOSED TO DEAL WITH THIS???
How am I supposed to reconcile my newly polyp-free, sticky'd up uterus, my supposed wonder donor eggs that made EVERYONE ELSE pregnant on the FIRST FREAKING TRY, my new and aggressive protocol that left me psychotic from the huge doses of Medrol and sore and black and blue from my hips to my thighs from the double PIO, with this NOTHINGNESS? What else could I have done? Am I that unlucky? Is there something awful hiding, undiscovered, that is the reason why I have to experience THIS MUCH PAIN?
I don't understand it. I thought for sure I was pregnant and all was good. Fooled again by the evil progesterone that apparently can mimic EVERY SINGLE symptom of early pregnancy.
Besides cry, drain my phone battery, eat Bryce's slice of lemon cake I was saving for him, and have wine for the first time in two months, WHAT CAN I DO?
Some people might wonder at what point I will consider other options. Well, I have six little Day One, 2PN embryos in the freezer. I don't think I can move on until those have been given their chance to make this cosmic tragedy into a happy ending. But do I just go for it? Or do we seek other opinions from big-name clinics, looking out of state? The problem is, I don't have an answer. There is no smoking gun. I was supposed to be all implantation-friendly after the polyps were removed. But that didn't work. I am working with DONOR EGGS, for pete's sake. That's supposed to mean SOMETHING. Frozens have a success rate of 30-40%, so I could just be THAT unlucky, again. But it is feeling awfully overwhelming, this piling up of evidence that this whole process is just not working for us. So do we move on to other options that are also time consuming, expensive, and a major process in of themselves? Or do we keep on going, since we have no concrete evidence that I can't get and stay pregnant and maybe it's just a matter of time and endurance? I know women who have babies in their arms right this very minute because they kept going when all seemed lost. But what if I am losing my stamina? What if I NEVER get an answer? When do I cry Uncle and cross a bridge to another avenue entirely? One that scares the pants off me? How about that the major adoption agency in my area recently shared that their waiting list for infants is so long that their program is currently closed? Do I let go of pregnancy AND experiencing a truly "fresh" baby? HOW MUCH CAN YOU ASK ME TO GIVE UP, FUCKING UNIVERSE??? HOW MUCH? I am at a loss. I am angry. I am incredibly sad. Do I take a break? Am I capable of taking a true break without perseverating and making myself miserable? Can we actually take a true break where we pretend we are normal married people who take vacations and enjoy spending money on fun, carefree things and not procreation which is supposed to be free? Can we manage not to be completely depressed on our fourth wedding anniversary that is rapidly approaching, since we were totally supposed to be pregnant for that? And now we have to hope it happens for the fifth? And DEAR LORD, not that this is the biggest berry in the patch of suckiness, but what about our CHRISTMAS CARD? I was hoping there'd at least be a little bump or announcement on that thing. Now I'm going to really have to do something humiliating to my cats. Last year's bow ties aren't obvious enough. That makes me incredibly sad, too.
I was worried this would be negative and I wouldn't know what to do. Well, it's here, and my research is at a dead end and I don't know what to do. Any thoughts out there? Any words of advice for someone who is apparently JUST NEVER EVER LEAVING THE GODDAMN TRENCHES? Other than "time to move on," because I'm not there yet. I have embryos and they will be utilized, just not sure how. Not sure what our reserves are financially for any next steps after these little embryolets are utilized. I am tired. My freaking thighs are sore from the shots. My hips and upper thighs are still numb from the hip shots that my body decided were too much this time around.
That's where I am. A very dark, very sad place. Feeling very, very alone and very, very left behind. This is a terrible way to feel. Also, I am fighting a respiratory infection thanks to school germs. So at least I have a doctor's appointment tomorrow morning that buys my puffy, bloodshot eyes time to normalize (ha) before I have to be there for my students in the afternoon.
This sucks. That is all.
Too bad my uterus wasn't full of positive. It's empty. Negative. Nothing doing.
A beautiful hatching blast and it's schmutzy companion did not care to stay.
This makes 20, TWENTY embryos that have come and gone.
HOW AM I SUPPOSED TO DEAL WITH THIS???
How am I supposed to reconcile my newly polyp-free, sticky'd up uterus, my supposed wonder donor eggs that made EVERYONE ELSE pregnant on the FIRST FREAKING TRY, my new and aggressive protocol that left me psychotic from the huge doses of Medrol and sore and black and blue from my hips to my thighs from the double PIO, with this NOTHINGNESS? What else could I have done? Am I that unlucky? Is there something awful hiding, undiscovered, that is the reason why I have to experience THIS MUCH PAIN?
I don't understand it. I thought for sure I was pregnant and all was good. Fooled again by the evil progesterone that apparently can mimic EVERY SINGLE symptom of early pregnancy.
Besides cry, drain my phone battery, eat Bryce's slice of lemon cake I was saving for him, and have wine for the first time in two months, WHAT CAN I DO?
Some people might wonder at what point I will consider other options. Well, I have six little Day One, 2PN embryos in the freezer. I don't think I can move on until those have been given their chance to make this cosmic tragedy into a happy ending. But do I just go for it? Or do we seek other opinions from big-name clinics, looking out of state? The problem is, I don't have an answer. There is no smoking gun. I was supposed to be all implantation-friendly after the polyps were removed. But that didn't work. I am working with DONOR EGGS, for pete's sake. That's supposed to mean SOMETHING. Frozens have a success rate of 30-40%, so I could just be THAT unlucky, again. But it is feeling awfully overwhelming, this piling up of evidence that this whole process is just not working for us. So do we move on to other options that are also time consuming, expensive, and a major process in of themselves? Or do we keep on going, since we have no concrete evidence that I can't get and stay pregnant and maybe it's just a matter of time and endurance? I know women who have babies in their arms right this very minute because they kept going when all seemed lost. But what if I am losing my stamina? What if I NEVER get an answer? When do I cry Uncle and cross a bridge to another avenue entirely? One that scares the pants off me? How about that the major adoption agency in my area recently shared that their waiting list for infants is so long that their program is currently closed? Do I let go of pregnancy AND experiencing a truly "fresh" baby? HOW MUCH CAN YOU ASK ME TO GIVE UP, FUCKING UNIVERSE??? HOW MUCH? I am at a loss. I am angry. I am incredibly sad. Do I take a break? Am I capable of taking a true break without perseverating and making myself miserable? Can we actually take a true break where we pretend we are normal married people who take vacations and enjoy spending money on fun, carefree things and not procreation which is supposed to be free? Can we manage not to be completely depressed on our fourth wedding anniversary that is rapidly approaching, since we were totally supposed to be pregnant for that? And now we have to hope it happens for the fifth? And DEAR LORD, not that this is the biggest berry in the patch of suckiness, but what about our CHRISTMAS CARD? I was hoping there'd at least be a little bump or announcement on that thing. Now I'm going to really have to do something humiliating to my cats. Last year's bow ties aren't obvious enough. That makes me incredibly sad, too.
I was worried this would be negative and I wouldn't know what to do. Well, it's here, and my research is at a dead end and I don't know what to do. Any thoughts out there? Any words of advice for someone who is apparently JUST NEVER EVER LEAVING THE GODDAMN TRENCHES? Other than "time to move on," because I'm not there yet. I have embryos and they will be utilized, just not sure how. Not sure what our reserves are financially for any next steps after these little embryolets are utilized. I am tired. My freaking thighs are sore from the shots. My hips and upper thighs are still numb from the hip shots that my body decided were too much this time around.
That's where I am. A very dark, very sad place. Feeling very, very alone and very, very left behind. This is a terrible way to feel. Also, I am fighting a respiratory infection thanks to school germs. So at least I have a doctor's appointment tomorrow morning that buys my puffy, bloodshot eyes time to normalize (ha) before I have to be there for my students in the afternoon.
This sucks. That is all.
Wednesday, September 25, 2013
Uncomfortably Numb
I am hoping that having some wacky things happen this cycle is a sign that the really important thing will not be wacko. Here is my latest wackadoodle experience--the PIO shots are causing me numbness.
Not I-need-a-wheelchair-I-can't-feel-my-legs numb, like Nellie faked on Little House on the Prairie, but someone-shot-my-hips-and-thighs-full-of-Novocaine numb. Especially my left side. Down at least a third of my thigh. The other side is just the side of my hip/outer thigh but not as pervasive and rubbery-feeling. I can walk, it just feels weird.
Has anyone else experienced this?
I am getting two shots of PIO in the butt every day and then every third day I add a del Estrogen shot into the mix, so my poor hiney is hurting. But I didn't think it would end up with this bizarreness.
I called the nurse line yesterday and they had me come in (I had to miss the pep rally today, aw shucks that was a shame...) to make sure we were injecting in the right spot. Bryce was completely horrified yesterday and was convinced he's doing it wrong somehow and he will help us achieve a baby but in the process paralyze his wife. Sweet, a tad neurotic, but untrue. When they redrew the sharpie circles on my hindquarters his sticks were right in the sweet spot. They think maybe the sheer volume of oil going into my ass is putting pressure on nerves and causing the numbness.
Here's the kicker: some people have experienced this numbness FOR UP TO A YEAR. Oh wow. Will this affect my goal to have epic Birthing Legs? Will I be rubbery and doll-like throughout my hoped for pregnancy? Dear jehosaphat I hope not.
Oh, and some other lovely PIO-related news... my husband is being told he needs to be on a plane across the country for a work emergency. Tomorrow. For a week. Guess who learned how to give herself PIO today while the nurse was trying to figure out the cause of the numbness? Guess who is probably going to be using 1 inch needles in her thighs because a contortionist she is not? This lady, that's who. I am thankful it is not summertime. I am thankful that while this whole development has me in tears and I am terrified, I'm pretty sure I can gather my mettle and get the job done.
It is absolutely amazing what a person can be capable of when they are focused on a goal. Do I want to shoot myself up with an oil-based injection and long needles? HELL NO. Do I have to to get what I want, what we've fought for for four long years of this crap? YESSIREE BOB. Am I thrilled that a weeklong business trip means I'll be alone for beta? NO NO NO NO NO! Can I handle it one way or another? YES. I guess so.
I can only hope that so many mini disasters in the midst of this miracle can only mean that the most important part is going right. That nothing is easy or smooth but I will get a good news call. Anything else is just TOO MUCH TO ASK OF THIS LADY. So please, Universe, if you are going to keep the hits coming, please keep them to self-injections and weird numbness and missing husbands during an important time in our lives. Let us have the precious miracle that we do all this madness for. Pretty please.
Not I-need-a-wheelchair-I-can't-feel-my-legs numb, like Nellie faked on Little House on the Prairie, but someone-shot-my-hips-and-thighs-full-of-Novocaine numb. Especially my left side. Down at least a third of my thigh. The other side is just the side of my hip/outer thigh but not as pervasive and rubbery-feeling. I can walk, it just feels weird.
Has anyone else experienced this?
I am getting two shots of PIO in the butt every day and then every third day I add a del Estrogen shot into the mix, so my poor hiney is hurting. But I didn't think it would end up with this bizarreness.
I called the nurse line yesterday and they had me come in (I had to miss the pep rally today, aw shucks that was a shame...) to make sure we were injecting in the right spot. Bryce was completely horrified yesterday and was convinced he's doing it wrong somehow and he will help us achieve a baby but in the process paralyze his wife. Sweet, a tad neurotic, but untrue. When they redrew the sharpie circles on my hindquarters his sticks were right in the sweet spot. They think maybe the sheer volume of oil going into my ass is putting pressure on nerves and causing the numbness.
Here's the kicker: some people have experienced this numbness FOR UP TO A YEAR. Oh wow. Will this affect my goal to have epic Birthing Legs? Will I be rubbery and doll-like throughout my hoped for pregnancy? Dear jehosaphat I hope not.
Oh, and some other lovely PIO-related news... my husband is being told he needs to be on a plane across the country for a work emergency. Tomorrow. For a week. Guess who learned how to give herself PIO today while the nurse was trying to figure out the cause of the numbness? Guess who is probably going to be using 1 inch needles in her thighs because a contortionist she is not? This lady, that's who. I am thankful it is not summertime. I am thankful that while this whole development has me in tears and I am terrified, I'm pretty sure I can gather my mettle and get the job done.
It is absolutely amazing what a person can be capable of when they are focused on a goal. Do I want to shoot myself up with an oil-based injection and long needles? HELL NO. Do I have to to get what I want, what we've fought for for four long years of this crap? YESSIREE BOB. Am I thrilled that a weeklong business trip means I'll be alone for beta? NO NO NO NO NO! Can I handle it one way or another? YES. I guess so.
I can only hope that so many mini disasters in the midst of this miracle can only mean that the most important part is going right. That nothing is easy or smooth but I will get a good news call. Anything else is just TOO MUCH TO ASK OF THIS LADY. So please, Universe, if you are going to keep the hits coming, please keep them to self-injections and weird numbness and missing husbands during an important time in our lives. Let us have the precious miracle that we do all this madness for. Pretty please.
Saturday, September 21, 2013
Sometimes Plans Change, and That's Okay
Ok, so first things first. I do not usually write about my cycles while I am cycling, which is kind of crazy since I use this blog to process my thoughts on stuff, and you would think that would emotionally constipate me. But, because I typically share this blog on facebook, I don't like everyone to know exactly where I am in my cycles. I've done that before and it was a complete disaster. So, I am breaking my rule because I am not posting all my posts on facebook anymore, and I just kind of have to write about this cycle. So, if you stumble across this post and you are a facebook person, please don't mention anything about my cycle specifics. Please pretend you're reading about someone else. I realize this is kind of weird, but there are times that I kind of regret having everything out there on facebook because I don't have the blissful anonymity of being able to write about my transfers and betas as they happen out on the blogosphere. At the same time, I don't regret spreading awareness and (I might be flattering myself) acting as a resource for others who aren't quite out of the infertility closet.
Feeling peaceful, feeling hopeful...just letting everything be. |
So. My transfer is complete, and our little embryos are snuggled in. What's that, you say? I thought you were doing a Single Embryo Transfer...I thought you'd done all this research and convincing and were all set on your decision? What happened?
Well, apparently that was one of those things that I have to let go of. The day before transfer I received a call from our embryologist asking how we'd like him to choose which embryo to transfer. What the freak? I thought--because I had just had this conversation a month earlier with the nurse who asked if we wanted to thaw two and transfer one and I totally didn't get it. Why on earth would anyone discard a perfectly good embryo? I mean, SET is great but I want to THAW ONE, TRANSFER ONE, thankyouverymuch. Not outright choose one blast over another. And now here was our embryologist, saying the same thing the nurse did. Making me feel like these people truly think we're crazy. Except he explained it. Apparently, they freeze the embryos in the same tray. There was never a chance for us to transfer only one, not since the blasts were frozen in June. I was very, very upset about this, because I had AGONIZED over the SET decision and really convinced myself that it was best (and still think it is), and it was never really a choice. So, I informed the embryologist that I guess we'd be transferring two after all. And now everything made sense--I would think we were crazy, too, if I thought we were asking to triage blasts for the sake of doing SET.
I was really mad at the apparent lapse in communication (how exactly does this come up THE DAY BEFORE TRANSFER???), but did not want to address it immediately. I don't really want to be aggravated and angry going into transfer, and I don't really want to piss off the people in charge of my future precious cargo. So we went with it.
Remember my cast of characters I was going to line up to watch transfer and give us mucho good juju? Here they are in action:
Good Fortune buddies, and embryos #19 and #20 to go into my waiting uterus. |
I usually feel funny about posting blast pictures, too. But, I figure they're kind of far away. The one on the left was "so-so" according to the embryologist--it wasn't fully re-expanded, which was disappointing. We had the choice again right before the transfer to not transfer it, but, to repeat myself, WHY WOULDN'T I TRANSFER BOTH if they're thawed? Just because it's a bit of an ugly duckling doesn't mean it shouldn't get a shot. I'd rather give it a chance in the uterine environment where it belongs and if it makes it, great, if not, at least it had a fighting chance. I am not ok with just discarding a blast. Those are the only children we've ever had. They are hard won and represent a lot of time and grief and medication and monetary cost. Now the one on the right, that one is perfecto. A B5 hatching blast. Yup, that's right, there's a little smudgy area at the bottom right where it is actually starting to hatch. I have never had one of these miracles before, so I can only hope it is a good sign.
Once home for bed rest, I set up my little meditation-y area on the coffee table:
I can't seem to let go of the whole red candle thing. You can't see it in the lotus thingie, but yup, red candle. And my happy little personal blessing lady. And Lord Ganesha. Can't hurt. The rest of my cast of characters are sprinkled about the house, some in my purse, all just little tokens to remind me that good fortune is possible. I have done everything I can to make this a success, and I can't do any more. It will either happen or it won't. I've already had plans set in my mind--just one embryo, please--that have had to change. And you know what? Such is life. Things change. I am not overly worried about twins, because I've transferred so many embryos in the past and never once got pregnant with multiples. But if it were to happen...things change. I can just accept what is coming my way and accept it wholeheartedly, because really, do I have any other choice? You can't change what's thrown at you. You can change how you deal with it.
I am full of hope. I am full of my little superstitions, and my little meditations, and I send sticky, loving thoughts down to my precious cargo all day long. My rest has been lovely, and I'm totally taking it easy all week. I am doing my best not to overanalyze everything. I am doing my best to just keep telling myself, "You've done all you can do. It's either happening or it's not, and you can hope for the happening, but there is no sense getting all crazy about it." I really feel pretty calm.
Of course I'm not without my crazy, like the little gallery audience I brought to transfer. Oh, and the virtual blastocyst shrine I have going in the dining room. Remember that beautiful Buddha statue my husband bought me for Christmas, the best and hardest present ever because it represented our lost baby from the miscarriage last summer? Well, that Buddha is watching over our little babylings. I have the pictures secured by the Hope shell in his lap. And floating above is my little clay star that a friend made me after our ectopic tragedy, to represent our little lost babyling who neglected to ask for directions. I hope that star guides these little potential babies home. I wanted to include our losses in our bid for hope. Without those losses we wouldn't be where we are today. I hope they help ease our take-home baby home to stay. We are so ready.
Subscribe to:
Posts (Atom)